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Update on me

ComfortablyNumb
Posts: 41
Joined: May 2013

Hi all. I wanted to thank you all once again for the encouraging things you said in response to my first post "So angry..." from a few weeks ago. Much has happened since then!

 

I've now had 3 chemo treatments (weekly Taxol for 3 months). Before the first one I had a fairly severe breakdown (just to recap, I have social anxiety disorder, so new situations are very difficult for me to deal with) but I did end up going through with the chemo. I really didn't feel much in terms of side effects for the first two treatments, so that was encouraging. 

A few days before my third treatment, I developped a cold. Not fun! I went through with the chemo anyway on the third week, but told my ongologist and my nurse that my colds tend to turn into pneumonia, so could they please send me for a chest x-ray while I was at the hospital anyway to make sure everything was clear? They did send me for one, and perscribed me an antibiotic that I could take "just in case", but they didn't feel it was anything serious. 

Fast forward to two days later, and I end up being rushed to emergency with a blood oxygen down around 85%, being pumped full of inhalors and steroids until I became physically ill, and spending 3 days in hospital on oxygen before I was allowed to go home. And to top it all off, my hair started falling out while I was in hospital. NOT the place you want to be dealing with that!

I've been home since Sunday, and i'm finally starting to feel better from the pneumonia today. Saw ongologist again on Tuesday who agreed that chemo would not be a great idea this week while i'm still recovering, so we will re-evaluate next week to see if I can start up again, or take another week off. 

The good news in all of this, however, is that according to him I have one of the fastest shrinking tumors that he's ever seen! So, I guess if i can only get lucky with one thing on this whole journey, i'll take an awesome super shrinking tumor over hair or a few days in hospital on oxygen. 

 

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Talk about a rough go of it.  I am so sorry.  I am very glad to see the good news about your tumor shrinking fast!  I will keep praying for you and you keep us posted.

Hugs, Diane

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

Sooo glad to hear that your tumor is shrinking so fast that is a very good sign. You should be dancing with Ned soon. ( Ned is No evidence of disease). I will keep you in my prayers and will be checking back on you often.

Take care Kay,

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Good news about the tumor shrinking! 

Praying,

Debby

disneyfan2008
Posts: 5334
Joined: Oct 2010

sorry you were so ill but happy you are home.

 

good news about the tumor...

 

Denise

SIROD's picture
SIROD
Posts: 2130
Joined: Jun 2010

A shrinking tumor is wonderful.  I'm on taxol too.  I had problems, anemia and need iron infusion, bleeding stomach ulcers but my last scan in May showed tumors in both lungs had shrunk and the ribs were stable.  

The trade off is hard and it's scary but .........  I also like the results.

Best wishes to you,

Doris

Kobias
Posts: 115
Joined: Jun 2013

This is such good news about your tumor.  Hoping it will shrink away totally!

Pink Rose
Posts: 495
Joined: Nov 2012

So sorry about the hospital stay and your being so ill.  Hoping you're on the road to recovery now and that the tumor shrinks away forever.

Hugs, Rose

Lynne P
Posts: 165
Joined: May 2013

Lots of hugs and positive thoughts!  Your good news was so welcomed!

 

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Thanks for the update!  Wish it were all good news, but the tumor shrinking is great!

JJDS
Posts: 259
Joined: Apr 2013

Praying it will continue to shrink for you.

 

ComfortablyNumb
Posts: 41
Joined: May 2013

Had the hubby shave my head tonight. I've been very day to day on this, because I had really thick hair and I could have gotten away with it a little while longer, but I couldn't stand sleeping with a towel on my pillow and clogging the drain every time I shower, so I just did it. Still on the fence about a wig, since I am a head sweater..

i thought I would be more sad after I did it, but I honestly feel kinda liberated!

 

does anyone have any tips on what a good moisturizer to use on my head? 

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Just to say that I am so happy your tumor is shrinking!

Sue :)

taylor manny
Posts: 114
Joined: May 2013

Would your oncologist or one of his nurses be able to help you with a moisturizer?  I didn't take chemo, so, I don't know what would be good.

Good luck!

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

It's good that you feel liberated after having your head shaved.  Always thinking of you and sending prayers!

ComfortablyNumb
Posts: 41
Joined: May 2013

Going in to see both on my oncologists (surgical and medical) this morning before hopefully resuming chemo later today. My tumor was 5mm when I was diagnosed and was close to surface, meaning I could feel it very easily, and now I'm not able to feel anything at all, even lying on my back...so we'll see what they have to say about that! Fingers crossed that they give my lungs the all clear so I can do chemo today...

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

Hope everything turns out well for you.

 

ComfortablyNumb
Posts: 41
Joined: May 2013

No chemo until next week. But my tumor has lost more than half it's size and volume an the month since I've started chemo, so YAY! 

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Yay for sure!  That is good news about the tumor! 

Sue :)

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Good luck next week with chemo!  I will be watching for an update.

Hugs, Debby

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

How are you doing? 

ComfortablyNumb
Posts: 41
Joined: May 2013

Back on chemo and feeling good :) ill be off the last of my pneumonia meds on Thursday, trying to stay indoors as much as possible right now though because the city is very smoggy from forest fires up in northern Quebec. 

 

 

Kat

Cheryl S
Posts: 82
Joined: Jun 2013

It's good that you're feeling good.  You take care!

Cheryl

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Your tumor shrinking is such good news.  Praying that it will shrink away forever!

Hugs, Kylez

grannabeth
Posts: 91
Joined: Apr 2013

Glad to hear that your tumor is shrinking. Praying that it will just keep on shrinking down to NOTHING!!!!!!  Am sorry that you have had such a hard time here recently. Make sure to rest a lot this weekend so that the pneumonia  will not come back and that your body can heal.

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Great news on your tumor!  I hope that your chemo will be easier for you.  Check back with us to update us.

Hugs, Debby

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Kat, how you doing now? 

JJDS
Posts: 259
Joined: Apr 2013

You doing alright on chemo?  Update us on how you are.

JJ

ComfortablyNumb
Posts: 41
Joined: May 2013

Im on my 3rd week back on chemo and feeling good, thank you all for asking. I've gotten really lucky in terms of side effects, the only  thing I've noticed is that I am a little more tired than usual, but breaking up my day to take a few hours off in the afternoon when I can, and trying to keep cool! (It's been up around 100 farenheit with humidity for the past week)

i have an appointment with both my onco's before chemo next week, so we'll see then low the tumor is doing. 

 

Kat

Lynne P
Posts: 165
Joined: May 2013

This is great news Kat that you're doing well.  Let us know how your appointments go.  And stay cool and rest!

Lynne

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Good luck and congrats on the good news!

Sue :)

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Congrats for your good news!  I am very happy for you and hope your appointment has more good news!

ladybug22's picture
ladybug22
Posts: 647
Joined: Sep 2008

good news the tumors is shrinking and sorry you was so sick . praying for you .just know we are here for you .

Nana Sue
Posts: 55
Joined: Jul 2013

How did your appointment go?  Are you still doing good on chemo? 

survivorbc09
Posts: 4378
Joined: Jun 2009

Such good news!  I hope that you continue to have no side effects on chemo.  Keep posting to update us.

Hugs, Jan

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