Jun 14, 2013 - 4:42 pm
Hi all, I had an incidental finding of a complex mass on my right kidney, "likely RCC", in early May, while working in OH. I immediately flew home to Oklahoma thinking I would see an oncologist but was instead advised to see a urologist. I'm 2 weeks post-op following a radical nephrectomy. A partial was not an option given the location of the tumor. The Dr said being that I'm 48 years old, he felt a radical was less threatening than if I were 20 something. I happen to feel like 48 is young, but whatever . Recovery is going good. At my 1 week post-op appt, Dr told me the RCC was Clear Cell, T1B level 2. He said I'd have blood work and chest x-rays at next appt, which will be Tuesday the 18th. My urologist, according to the man that referred me and everything I've read about him, is top notch, specializing in kidney transplants. He is highly respected and I feel very lucky to be in his care. My only complaint is that, although his bedside manners are fine and he is certainly nice enough, I don't feel like he gives me enough information in regards to what I can expect from here on out. I asked him what stage my cancer was and that is when he told me it's a T1B, level 2. What the heck does that mean? I never got a straight answer. He talks to me like I've had cancer before and ought to know. He tends to be in and out of the room so fast that my questions go unanswered. Do I need an oncologist? What stage was my cancer? And, now that it's been removed, does that mean I'm cancer free? I googled T1B, and it seems to be stage 1 but, I don't know what level 2 means. I asked him if he removed lymph nodes for testing and I'm pretty sure he said that he did not. I thought for sure that would be standard procedure. And why, if the cancer was in my kidney, am I having chest x-rays at follow up? Dr said I could return to work in Ohio the first week in July. That's great! But not having answers to my questions makes it hard to know if I can expect to be flying back and forth between OH and OK for follow up appts and if so, how often? A lot of questions, I know. Greatly appreciate any advise/feedback!!