Jun 10, 2013 - 12:47 am
1st post here. My husband was diagnosed with SSCHN on March 24th 2013. His tumor is in his left face and is greater than 8cm. His team seemed undecided on his treatment plan for an extended period of time and after flip flopping tx decisions finally arrived at 3 rounds of cisplatan/docetaxel 21 days apart and then adjuvant 33 rads w/ chemo. Radiation doc felt the tumor is too large to radiate and want to shrink it with chemo before radiation. He is taking Morphine, Promethazine and Ondansetron.
Here is my issue, this man is so sick since Tuesday (first round of Cisplatin et al). He is taking his meds on schedule (one forgotten dose, that won't happen again). He has had 1 Wendy's frosty and 3 popsicles only in the "nutrtion " department. We have attempted Nutren in his PEG tube once and that threw him into a bout of vomiting that he wont do again. His hydration is good, he actually drinks water by mouth and we use his PEG for H20 with no issues. I paged his doc on Thursday and he said to not be concerned about food, just hydration for now and to monitor his temp. I am doing all of these. This just seems so inhumane. I'm wondering if his condition is the norm for someone undergoing this therapy or is he having a stronger reaction than most? He has said twice now that he won't do chemo again... lord, he's only just begun. Is there a way to approach his doctors to either 1) Prescribe more meds to keep him "knocked out" so he's not suffering to this extreme or 2) Have him admitted to a hospital to keep him comfortable for the first several days post chemo. He is so weak and disoriented and just miserable...he says he would rather die. If anyone has any advice or can share their experience with me, I would greatly appreciate it. Pre diag. he was a very active, strong 46 year old and now he is suffering a downward spiral at such an alarming rate.
Thank you in advance.