Jun 08, 2013 - 9:11 pm
I have been on Temodar for almost three years now 5x400mg 5/28 days - Concurrent with Novocure
Take a single tablet of zofran to manage nausea after the first year.
Blood counts no problem.
Sleep pattern, fatique 7 Brain fog, constipation, i think are getting worse extending beyond the 5 days of taking the pills to 7 days.
i fight the fatique with extra work which causes immediate sleep when i get home resulting in being up at 3-5am most mornings then sleeping until 8am and starting again.
Would be interested to see what other people do and any advice how long to keep taking it as I am given to understand that two years seems to be some sort of break point