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Another First Followup After Treatment

jthornsbury
Posts: 38
Joined: Feb 2013

Have my first set of followup appointments this Monday-Wednesday at MD Anderson in Houston.  A little anxious about the whole thing but know it is something I need to get used to at least for the next five years of my life. Any advice going into this from those who have gone before...

 

Thanks!

Skiffin16's picture
Skiffin16
Posts: 8027
Joined: Sep 2009

LOL, just teasing..., we all go through some sort of scanxiety, or pre-checkup anxiety... It gets a little better the further out you get, first year or two is the worse.

fishmanpa's picture
fishmanpa
Posts: 1073
Joined: Jan 2013

Hi JThorn,

I just did that yesterday and saw my MO. I wrote down some questions I had and took a few notes too. At this point being that I'm not getting scanned or scoped it wasn't too stressful but still, not knowing if Jack is totally gone is a little nerve wracking. She just poked around ny neck and checked out my mouth and throat. Make sure you bring a list of all the meds and doses you're taking. They inevitably ask for it every time (they want to see if anything has changed). 

Good luck! Positive thoughts and prayers

"T"

PS... she poked and prodded and looked into my mouth and thoat and said I was doing well... no scopes or scans for another two months. Everything has to settle down inside to avoid false positive readings. 

 

HobbsDoggy
Posts: 165
Joined: Feb 2013

I don't know of any easy way to face this and its always going to be scary, at least for me.  I guess I do think about the fact that most people who go through treatment di well and that so far it is going well.  I can calm myself by reading all I can about cancer, for some people that wold be a bad idea.  Also being a member of a local cancer surviors group has been a big help to me.  I also totally agree that writting down the questions helps.  So far my check ups have been brief deals with check down my neck to look for problems so far so good.

 

Duggie88's picture
Duggie88
Posts: 467
Joined: Feb 2010

Drink.......but do it in the parking lot at the doctor's office so you don't drink and drive. I am also kidding.

The follow up visits prescans wasn't so bad. My first visit after a PET scan was nerve racking. I waited two weeks after the scan for the doctor appointment and I was two days shy of checking into the funny farm. But it was all worth it JT as it will be for you. Come the time for your first scan, I would ask the doctor if you can call to get  the results before your office visit. My doctor told me I can always do that. I did so for the second one but haven't since because I have learned to control the drama in my head thanks to the first two being NED.

Get ready to celebrate....then you can drink (at home)

Enjoy the day

      Jeff

jthornsbury
Posts: 38
Joined: Feb 2013

Jeff,

 

I will see the Doc's the very next morning after the scan...so will have just a short waiting game.  thanks for the encouragement and good words...will let you know on Wednesday if I get to meet NED!

 

Jon

fishmanpa's picture
fishmanpa
Posts: 1073
Joined: Jan 2013

Jeff and John,

Drinking is all fine and good but dang it! It hurts my mouth!! ~lol~ 

"T"

 

Duggie88's picture
Duggie88
Posts: 467
Joined: Feb 2010

That is where the oxycodone chaser comes in LOL

Skiffin16's picture
Skiffin16
Posts: 8027
Joined: Sep 2009

LOL...

fishmanpa's picture
fishmanpa
Posts: 1073
Joined: Jan 2013

A challenge?

"T"

Duggie88's picture
Duggie88
Posts: 467
Joined: Feb 2010

Allow me to grab a beer, pop open a lawn chair, and watch the show. OK yes I believe I read a challenge

fishmanpa's picture
fishmanpa
Posts: 1073
Joined: Jan 2013

You think you can sit on your patootie and watch?... Ohhh no... you're in on this too!

"T"

Skiffin16's picture
Skiffin16
Posts: 8027
Joined: Sep 2009

Well T, if you drink enough, you won't feel the pain..., LOL. My choice of chaser at the tine was a crushed percocet in a little water. I'm sure in a few months you're going to be able to handle most anything you attempt.

JG

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

 

Darn , I am going to MD Anderson on Thursday so I will just miss you !! Isn't MDA a wonderful place if you need to be there ? If you really are very anxious , take a xanax like I do a little while before your scan or Dr. appointment. I am sure you are going to hear NED ( no evidence of disease ) so try to relax. My best to you.

Peggy

phrannie51's picture
phrannie51
Posts: 3419
Joined: Mar 2012

is the scariest.....of course the fear level for later scans lessens in much the same way as we heal....by degrees (when I got the results of the first one I literally dropped to my knees and cried)....that didn't happen the second time Smile, tho my heart was trying to beat out of my chest.

p

jcortney's picture
jcortney
Posts: 371
Joined: Sep 2012

The night before the first one was a bit scary, but not nearly as bad as the first CT at three months.  I could not get to sleep the night before even though I knew everything was going to be fine.  My PET after and each follow up has been a breeze so know that it will get better.

Good luck

Joe

dunedintech's picture
dunedintech
Posts: 58
Joined: Apr 2013

Jon - go well today. Interestingly I am 9 weeks post treatment today and have my first ENT appointment /  checkup this afternoon. Scan in 3 weeks time (I am based in Singapore) Fair to say last night was not great for sleeping but that seems to be normal from what I have read on this site.

Positive thoughts for today.

 

katenorwood
Posts: 1740
Joined: May 2012

Yes we all seem to go through this.  But you made it through the trenches.  I giggle at people who don't have Jack and squirm at the idea of the scope.  Yeap it's a funky feeling, but considering what we've all been through it's a breeze.  We'll be thinking only positives for your check ups....I take a benedryl sometimes the night before so I can get some decent sleep.  Please keep us posted.   Katie

CherieLW's picture
CherieLW
Posts: 395
Joined: May 2013

I don't have any advice, but just letting you know I'm wishing for the best and hoping your anxiety lessens!  Hoping for the best!

jthornsbury
Posts: 38
Joined: Feb 2013

friends,

my scan came back with issues in several lymph nodes and so i will be returning to MDA in a month for ultrasound and needle biopsy if positive.  Then i will have surgery to remove a 17mm node on the right side of my neck.  Not exactly what I wanted to hear but the rad doctor was very positive as she said this would be the last step in dealing with the issue. If I need surgery when I return.  Still a little bummed!

Thanks for through and prayers!

Jon

hwt's picture
hwt
Posts: 1655
Joined: Jun 2012

So sorry to hear that your scan wasn't what you had hoped for. I've heard good things about MDA. Prayers that your return trip next month brings you good results.

fishmanpa's picture
fishmanpa
Posts: 1073
Joined: Jan 2013

Hi Jon,

Sorry to hear they found additional issues but at least it was encouraging that the Drs' were positive about it.

Positive thoughts and prayers that this will be the last step. Keep your chin up!

"T"

donfoo's picture
donfoo
Posts: 1003
Joined: Dec 2012

Jon,

Not the best news but it seems like you are very capable hands and things look positive. Try to view it as just one of those things to deal with along the road and nothing that is going to cause the car to derail or spin out. You got lots of good momentum. Hang in there. don

Skiffin16's picture
Skiffin16
Posts: 8027
Joined: Sep 2009

I would tend to say it could be residual, but if it's specific nodes, probably likely a dissesction will take place, and then further scans... No real unusual, and a lot of times takes care of the lit nodes...

Thoughts & Prayers..

John

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