Jun 08, 2013 - 12:48 pm
35 years old, diagnosed 3/27/2013 with moderately differentiated gastric adenocarcinoma, T3N?M?, H. Pylori negative. Tumor was ulcerated, approximately 6 cm, in middle body (lesser curve). Exploratory laparoscopy showed no peritoneum involvement (negative biopsy and cytology). PET/CT showed no other organ involvement, but some suspicious... distant lymph nodes with activity/enlargement (those lymph nodes were never biopsied, but if they are malignant, than I'm obviously stage IV).
I've almost completed three cycles of EOX (EO infusions every three weeks + 1500 Xeloda every day w/o a break). Next week I have first post chemo tests (UES and PET/CT) to determine if/when they proceed with surgery.
I'm currently treated in Mt. Sinai and Sloan Kettering in NY. In about 10 days, once I have test results back, I'm flying to MD Anderson for my first appointment with Dr. Ajani.
Scary part: I have this horrible life-threatening disease, but I feel absolutely fine. Currently, I have no symptoms of disease and no side effects from chemo. I work full time, have normal energy levels, good appetite etc. In the last year, I lost approximately 25 pounds, but since I started chemo, I gained 13 pounds back. I secretly hope that these are good signs, but rationally I understand that it probably doesn't mean very much and only tests will show how chemo is working.
I'm truly looking forward to receiving any information, advice, or feedback you may have. I know sometimes people are reluctant to offer their views, opinions and suggestions in these types of situations, but I would appreciate hearing everything. Obviously, please do not hesitate to ask me anything.