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Nivolumab-Sutent Scan results

Darron's picture
Darron
Posts: 271
Joined: Jun 2013

Great news today from the world of Nivolumab/Sutent. scan summaries for my remaining left adrenal gland tumor:

6 weeks scan-up 10%

12 week scan- down 30%

18 week scan today -down 50%

Doctor feels like the delayed response is more consistent with an immunity response vs. the Sutent.

i just found he site last week and readever about everyone helped keep me calm for scan day.

hate that I am here, but thankful for the company!

 

cjm11
Posts: 11
Joined: Jun 2013

I'm very new to all of this and don't really understand what you are going through yet, but if it is great news, then congrats!  Cool

garym's picture
garym
Posts: 1651
Joined: Nov 2009

WAY TO GO DARRON!!!

Raine22's picture
Raine22
Posts: 33
Joined: Jun 2012

Congratulations Darron!   That is fantastic news!

You give me great hope.  I go back 8/23 to see if mine is growing...

Where are you being treated?

Have a great weekend!

Lorraine

Darron's picture
Darron
Posts: 271
Joined: Jun 2013

Lorraine

I am being treated at the Levine Cancer Institue in Charlotte.

Where are you located?

 

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

I'm just down the road, just south of Greenville SC!

Salud!

Michael

AprilandChuck's picture
AprilandChuck
Posts: 107
Joined: Feb 2013

Hello...my husband is also at Levine in Charlotte...glad you found the site..it is a calming place..have you checked out Smart Patient yet? There is a bunch of useful info there also..sending well wishes 

Raine22's picture
Raine22
Posts: 33
Joined: Jun 2012

Luckily enough, I'm in Houston, so I'm being treated at MD Anderson!

 

keep in touch!

Darron's picture
Darron
Posts: 271
Joined: Jun 2013

It is worth mentioning that after surgery, they waited to see if my tumoer was growing as well. There was thought that I may fight it on my own. When that didn't happen, the trial or IL-2 was offered.

Darron's picture
Darron
Posts: 271
Joined: Jun 2013

I have been there for work and hear that the downtown is excellent.

I am a big Red Sox and and want to go to a G'ville Drive Game one day this summer.

 

alice124's picture
alice124
Posts: 894
Joined: Mar 2012

I'm thrilled Darron. Couldn't be happier. As I mentioned to you in the email, magic bullet!?!?!?

 

John's next scan is Thursday, June 13. Let's keep this going. . .

 

Wanna see shrinkage everywhere!

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Ah er Alice.. do we have to have shrinkage "EVERYWHERE"..??   I mean sure the tumors.. but... heh.. heh.. heh..   OK, my next scans are on July 5th.. may save a few firecrackers for afterwards...

Be Well All..

Roj

alice124's picture
alice124
Posts: 894
Joined: Mar 2012

Excellent point Ron. Guess I should have stipulated "tumor shrinkage."  Good catch!

 

 

foxhd's picture
foxhd
Posts: 2258
Joined: Oct 2011

Pretty soon you'll be like me. Everything in soft tissue has shrunk and gone away! Can you say something like 20 of them? I get my latest scan results in the morning. Now we'll see how the bone buggers are doing. But I'll tell you what. I'm jumping on my bike for another thousand miles over a few days regardless of the result. Keep up the GREAT progress!

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