Jun 04, 2013 - 2:26 pm
Hi everyone, it's been awhile since I've been on here. My father who was diagnosed with T3N1M0 last November underwent an Ivor-Lewis mid-March. The surgery went great and he recovered fantastically. He was almost able to eat steak after a month. Well, post-surgery, his oncologist recommended that he continue chemo even though his surgeon said that he got all the cancer and all the lymph nodes were negagtive. I don't know what type of chemo off-hand, but the regimen was supposed to be 4 pills in the morning and 4 pills at night (daily), and three concentrated IV doses separated 3 weeks apart. This was supposed to go on for three months. After his second day of taking the pills and his first IV infusion, he developed horrible abdominal pain 8 hours after the IV chemo. This abdominal pain is located near his belly button (far from the surgical sites) and has continued for the past 6 weeks. It's put him in the hospital twice because it doesn't go away. Additionally, he can't eat and is nauseous all the time. He's dropped more weight from this over anything. The two times he was in the hospital, his surgeon got a CT scan and has done another upper esophageal endoscopy. They even went in to dilate a narrowing around the surgical site and nothing has helped. Additionally, all the scans came back negative. They keep finding nothing and sending him home. I'm not sure if the CT scan was just in the thoracic region where his surgery was or if it included the abdominal area. They also have not done a colonscopy yet as I don't think they think it is warranted.
Has anyone had a similar problem? We are at our wit's end and don't know what to do since the doctor's and hospitals won't do anything. I made an appointment for him to see a GI specialist today, but we are losing hope. The chemo has not continued since this all started so I think something is seriously wrong in his abdomen. He just keeps losing weight, can't eat, and is having trouble holding on. I don't know what else to do...