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Still NO Treatment Plan

coco2008's picture
Posts: 420
Joined: May 2013

It's been over 2 months since I was diagnosed.  2 lumpectomies followed by both incisions being reopened to get good margins.  Today was to be the day I finally got a tx plan.  I've been a wreck with all the waiting.  Saw onco this morning and was told the Oncotype test results were not in yet.  So it will be another week before I find out if it's to be just radiation or chemo and radiation.

If the results are not in next week I want to tell him to go ahead with chemo, take them both off, or just shoot me in the head.  I would rather have bad news than no news.  Bad news or really bad (there is no good news) I could begin making peace with it.  No news I'm still waiting for the unknown. There is no peace.

Posts: 6012
Joined: Oct 2010

sorry to hear you are doing the waiting game that is the pits for sure. TO us it is very very urgent but to the Drs and medical professionals-the wait is not the same.


I HOPE you hear something soon-if not if you insurance would cover 2nd opinion I would do that.



coco2008's picture
Posts: 420
Joined: May 2013

It's not the doctors fault. It's the lab in CA that does tthe Oncotype test.  You are right, to us it is urgent, to the labs it's same stuff, different day.

Angie2U's picture
Posts: 2993
Joined: Sep 2009

Sorry coco.  I know how hard it is to wait.  Next week you will know and then you can hopefully feel better.  We're here waiting with you.

Hugs, Angie

coco2008's picture
Posts: 420
Joined: May 2013

There have been so many ups and down. Tentative tx plan, only to have possibilities for tx change.  Different test results due, and not coming in for (to me) a terribly long time. It's been over a month since my last surgery.

I can't get my hopes up again. I have an appt next Tues, but expect nothing. I'm losing hope and confidence with everyone.  All I do is cry and worry.

kmenurse's picture
Posts: 223
Joined: Apr 2013

Hello, I understand, the waiting was awful for me me also.  But, I also know that these tests go to a specialty lab so it does take longer to get the results then it would for more routine tests. Hang in there it will all come together for you.   Kathy

lmoneill2012's picture
Posts: 9
Joined: Jun 2013

I hope you find your "peace" soon. I know that each moment feels like a lifetime.

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