Jun 04, 2013 - 9:23 am
Hi. I am new here. It's been a rough two months. I had a tumor removed from my thigh, came back benign and I was elated. In the time it took to have the tumor removed from my thigh, I found two masses on the BACK of my neck, and once everything was done and settled with the thigh tumor, I went and had the neck masses looked into. After tests, tests, and more tests and countless doctor visits, the two masses in the back of my neck were removed and came back benign. What brings me here today is that when I saw an ENT about the two neck masses, he had made a joke and said, "If I were you, I would be focusing on the large lymph node you have in the front of your neck." I was so caught up in the two masses on the back of the neck that I didnt even notice the enlarged lymph node on the front left side of my neck. I feel like with all the problems I have had I am at my wits end with this lymph node. I also noticed that my left tonsil is larger than the right and it appears in a lobular form, where the right tonsil is round. So to sum up, a large left lymph node, and a large left lobular tonsil. My fear is that this is HPV SCC, or possibly lymphoma. I am a 28 year old female. Married for 7 years and with two young daughters. The lymph node and tonsil do not hurt. But my left inner ear does only when I swallow a d has for a while now. I do not know my odds of getting HPV SCC. Everything I read focused on males 30 to 50 years of age. But as far as younger women, I know it is possible, I am just trying to find out the likelyhood and what my chances are and the prognosis. Is there anyone here who has been in a long remission with the cancer? A lot of the research I find say 90% 2 year remission, but a lot of studies don't go beyond that. What about 5 years, 10 years, so on. I guess because this cancer is still new that is why there is still a lot to learn. I am not diagnosed yet, but I am thinking it is a likely possiblilty for me. It's now been well over a month and the lymph node is only growing, with no sign of any cold infection and is non tender. My tonsil has not gotten bigger, but like I said, is very noticably larger than the right tonsil and lobular in shape. I went to see another ENT and he said he would do a tonsilectomy to "ease me mind" my fear is that if this is a HPV SCC would there be a need to eush in for an additional surgery to get any remaining tissue? Since this ENT is going into it as nothing more than an tonsilectomy, I am concerned the proceedure will not be done as it should be when cancer is suspected. It also seems that a lot of ENT's are really not familair with the HPV SCC. Any insight would be much appreciaited. Thank you for your time.