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bone pain after treatment and what dr uses for pain control

anoel
Posts: 2
Joined: Jun 2013

 I am having bone, leg and back pain after 6 mo ovarian  cancer treatment. I am now 5 weeks from last  treatment but I still need my pain meds. When do I stop needing these meds. What are some of you who have pain still using to rid themselves of the bad pain. also the neuropathy is still in my fingers and alot in my feet. I hope this goes away. I am very tired and can sleep at any time.Is this normal? I guess I just want to know how to get back to normal. Please help with suggestions

anoel

mopar
Posts: 1961
Joined: May 2003

I do remember all that pain - it was horrible.  But I also remember that in time most of it subsides.  For neuropathy, I took B-6 as well as L-Glutamine (powder form).  It does help quite a bit to get you through the rough spots and speed up the detoxification process.  I can remember my Hubby feeling so bad for me and he would say, 'let me massage your arms (or legs and feet).  At first, it sounded like a good idea.  But it hurt even more, and the pain and burning was unbelievable.

As for the bone pain, the two nutrients I mentioned can also  help.  But you also need to continue to drink lots of fluids to flush all of this out of your system.  I was always instructed to do so, especially right after each treatment.  Hopefully, your are taking some supplements that will support your bones (such as Vitamin D, and Calcium/Magnesium).  Green vegetables are a good source of the cal/mag also.  

I also got some relief for the bone pain by soaking in a warm/hot bath, then getting into bed for the night right away.  I know that other Ladies will offer some other suggestions too.  I may have forgotten some, as it was 2000 for my first diagnosis, and 2006 for my recurrance.  I think some things have gone 'out of sight, out of mind'.

Sending Prayers and (((HUGS)) to you, Anoel.

Monika

 

anoel
Posts: 2
Joined: Jun 2013

 Thank you for your support and information on the supplements.Right at this moment the Dr's are starting to get me off the pain meds' , thank goodness but i hope the pain will not me worse. I am trying to do some low key exercises, do you have some advise? I am quite tired but getting off the meds might help. What stage were you on your first occurance of ovarian cancer/ That is if you do not mind telling me. How are you doing now after your recurrance?  Mine is stage IIB. how did you find out about your recurrance? I feel I am just out there and it is hard to know anything. I appreciate you and your comments.

Sending prayers and good energy to you, Monika

mopar
Posts: 1961
Joined: May 2003

I was stage 1C.  Didn't even know I had cancer - no signs or symptoms.  I went to my ob/gyn for my yearly check-up and he found a uterine fibroid.  Then he did a CA125 test (which I had never heard of before), and call me with results.  Because it was slightly elevated, he thought it best I see an oncologist.  His suggestion saved my life.  And although the CA125 could have been elevated due to the fibroid and/or my history with endometriosis, the oncologist scheduled surgery.  Said he would be as 'conservative as possible'.  Turns out everything was removed, because it was OVCA.

As for the recurrance, once again I had no symptoms.  But the CA125 was slowly and consistently rising, so the onc scheduled another surgery.  A tumor was removed, and I had the 6 rounds of chemo again.

Today I am doing well!  I am overdue for my CT scan, but I'm still paying off the two that I had several years ago.  However, I keep up with the CA125 test, and will be scheduling a follow-up visit with the doctor soon.  I understand your confusion, and difficulty in knowing what's 'right and wrong'.  For me, it comes down to knowing my body, my 'signals', etc.  It can't be 100% perfect, but for me the CA125 has become the indicator that something could be going on if there's a consistent rise.

As for exercise, anything that you can handle and enjoy.  My program consists of weight training and some cardio.  I am on my feet all day long, and on the move constantly, so I focus on bone-strengthening resistive training.  It keeps up my muscle mass, decreases fat, and makes me feel stronger, too.  For lymphatic cleansing (very important since I'm minus about 60 lymph nodes!), I use the mini trampoline, sometimes the larger one we have outside, too.  

Hope this helps, Anoel.  Will be happy to answer any other questions you may have.  Don't be too overwhelmed right now.  Focus on getting your strength back (try to take some walks to relax you and strengthen you).  In time you'll find what you prefer.  Pain will subside in time as well.  I know, it's a long process.  But moving forward a little at a time is always progress!

Prayers & (((HUGS)))
Monika

 

scatsm's picture
scatsm
Posts: 268
Joined: Apr 2013

Anoel,

I continued to have symptoms of fatigue and bone pain for months after my last treatment which was in March 2012. Even 6 months later, I was not back to "normal". Now, after 15 months, I feel like my old self, am able to exercise, be active and feel good. As Ii look back, it was a slow process. Chemo and surgery really takes a toll and I had been ill from the ovca for several months prior to diagnosis. I also think that having 4 rounds of carbo/taxol followed by surgery and then 4 more rounds didn't help. I wasn't very strong by the time I had the surgery. No matter how it plays out, it takes a good long while to feel better, so be patient with yourself.

Today I am going to a "Laughing Yoga " class at my local cancer community center. There are a few perks for being a survivor, and trying out new things like that is one of mine. I am going to laugh that nasty cancer away!

All the best,

Susan

Mwee's picture
Mwee
Posts: 1338
Joined: Nov 2009

A keen eyed chemo nurse at my ONC's office noticed that my magnesium level was very low. I was experiencing lots of bone pain that would keep me up at night. I've been taking prescription strenght doses for the last year and it has made a huge difference. I'm actively in chemo treatment, so this might not work for you, but it might be worth asking about at your next appt.

                                                                                 (((HUGS)))   Maria

kikz's picture
kikz
Posts: 1312
Joined: Jun 2010

in my joints for close to a year after treatment.  It gradually decreased.  The hardest part for me was getting on and off the toilet.  I had to put my hands on the vanity and push myself up.  We have had both toilets replaced since then with the higher models.  Not the handicapped just a higher version.  I think that will help me this time.  Though when I use a toilet somewhere else, it feels like I am falling to the floor. 

I hate to admit, since I despise exercise but it did help when I started yoga and my weekly hike with my cancer support group.  My onc has told me to walk and the instructions from the cardiologist say to exercise 30-40 minutes.  I don't think that is going to happen too soon.

THis time I had severe pain in my bones after the first chemo but it went away.  The second chemo I had a little pain for a day or so.  You just never know what will happen.

 

Karen 

Alexandra's picture
Alexandra
Posts: 1307
Joined: Jul 2012

About a month before I got diagnosed last year I had stock springs in my car replaced with Eibach Pro lowering springs, creating a very low stance: the car looks like it's scraping the ground. Also I replaced stock 18" wheels with 20" which significanly reduced the tire radius and consequently cushioning. Little did I know. Smile

Now imagine this picture. Sexy black pimped-out sports car pulls into the parking spot. All eyes are on it. The door swings open. Yours truly, a 200 lbs nearly bald woman with a grimace of pain grabs onto the roof of the car with 2 hands, slowly pulls herself up, climbs out and limps away into the sunset. I tell people that I am training for Indy 500.

I take Naproxen (aka Aleve, Anaprox, Antalgin, Apranax, Feminax Ultra, Flanax, Inza, Midol Extended Relief, Nalgesin, Naposin, Naprelan, Naprogesic, Naprosyn, Narocin, Proxen, Soproxen, Synflex and Xenobid). It does not do much for my lower back pain but seems to relieve pain in the knees. For the back I bought myself a mat with plastic prickly flowers, called Applicator Kuznetsova and I lie on top of it for as long as I can bear. It's a type of reflexo-therapy similar to acupuncture or Shakti mat.

CRM's picture
CRM
Posts: 13
Joined: Sep 2013

My doc recommended taking benadryl for 3 days before chemo and to my surprise it really did help with the bone,  leg and back pain caused by the chemo.

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