Jun 01, 2013 - 2:16 am
Hey guys! Hope everyone is well.
Background: radical right neph, incuding adrenal and lymph nodes. surgery 3/28/12, stage 3, grade 4 Clear Cell, 49 year old fèmale. Put on Votrient-placebo study a year ago.
CT scans have been ok. In 10/12, Ct showed new spot on remaining left adrenal gland. 2/13 showed shrinkage in nodule in left adrenal gland. As of Tuesday, 5/28, the same spot has increased in size, but still too small to biopsy. Rather than changing my schedule to CTs every 6 months, I go back again in 3 Months.
i havent really been able to find out much information n the Internet regarding this, other than if its mets and has to be removed, I will have to be on steroids for the rest of my life.
Not to be a worry wart, and I'm very happy there are no sign of mets to the lung or liver. Anybody have experience with the adrenal gland ordeal? I was so anxious to get this one year behind me and go to 6-months for checkups.
my 53 year old neighbor of 20+ years passed away a week ago from stage IV lung cancer. She was just diagnosed in 1/13. W raised our kids together.
i hate this ****, but am so grateful for everybody here. Thanks for sharing!