CSN Login
Members Online: 3

stage 2a grade 9/9 her2 positive

chicaroo44
Posts: 18
Joined: May 2013

i recvd my pathology report back from my mastectomy may 17th.  left breast is stage 2a, grade 9/9, her2 positive.  the right breast was stage 1, grade 9/9, her2 positive. i also tested positive on the brca 1 test.  i will be getting my ovaries removed in the next six months.  im 44 years old.   anyone else with those diagnoses?  im looking at meeting the oncologist the 2nd week in june.   everything ive read states its the most agressive type of breast cancer. 

 

i have my expanders in right now,  and 2 of the 4 drain tubs still.  they are driving me nuts.  the allederm makes me feel as if i have a tight rubber band around my rib cage.  anyone with the same feeling?

 

any diet suggestions or treatment suggestions would be greatly appreciated.  this isnt a death sentence, is it?  what are the prognosis?  the length of life after diagnosis?

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

No, it is NOT a death sentence!  I had a lumpectomy chicaroo44 and followed that with radiation treatments. 

Sometimes reading material off of the internet is not a good thing as it doesn't pertain to you as an individual.  Wait until you talk to your oncologist.  He will have your treatment plan and will discuss everything with you.

I wish you all the best and am sending lots of hugs and prayers.

Debby

Josie21
Posts: 338
Joined: Nov 2012

First of all, your diagnosis is NOT a death sentence!! Second, stay off the Internet!!  Everyone's breast cancer is different.  The best thing you can do is take a breath and continue to heal from your mastectomy. You will need your strength, so try your best to get it back.  If you feel like you are overwhelmed or depressed, please talk to your doctor.  You might need a little help to get through this either with medication or counseling.  You were told you have breast cancer and you are allowed to be scared out if your mind. It's normal, but you need to move forward so you can give yourself the best chance of kicking cancer to the curb!  And yes, Her2 positive can be aggressive, but some of the best drugs to come out recently for breast cancer are for your type.  My aunt had stage 3 HER2 positive breast cancer and that was 7 years ago.  She kicks my butt everyday when we exercise at Curves!  As far as removing your ovaries, I did the same thing.  I had a BRCA mutation of 'unknown significance', and I was already going through menopause because I was taking tamoxifen, so I had a hysterectomy. They took everything but the cervix.  If you get it done laparoscopically, I can honestly tell you my recovery time was practically nothing.  I had no pain and I wish you the same.  

Please continue to come to this site.  It is a life saver!  You will hear back from piink sisters and brothers who can help ease your mind by answering your questions based on experience. If I had known about this site when I was diagnosed I could have saved myself a lot of  grief.  When I  was diagnosed 4 and a half years ago I felt alone and I felt like no one knew what I was going through.  I don't feel that way any more.  Stage 0 to Stage 4, woman or man, we are all breast cancer survivors and you will be too!

Hugs to you,

Ginny

survivorbc09
Posts: 4378
Joined: Jun 2009

Wishing you good luck!

Hugs, Jan

cinnamonsmile
Posts: 1049
Joined: Dec 2010

From what I have read and learned you DO NOT have the most aggressive type of breast cancer. You don't mention if you're cancer is progesteron and estrogen positive. Those are also important things to know. I have never heard of grade 9/9? Are you from the United States? Here in the US grades are normally grades 1,2, and 3.

You are Stage 2 and I am assuming IDC (Invasive Ductal Carcinoma). You also don't state if  you had any sentinel or axially lymph nodes removed. That is important information to have. I am not a doctor, but I don't believe it is a death sentence for you. There are women living with Stage 4 breast cancer for many years. I know CypressCynthia and Sirod have been around for many many years!!

If you are going to research your breast cancer, stick to cancer.org, which I highly recommend. That is The American Cancer Society's informational pages. You can also call The American Cancer Society. Just look at it for basic information about cancer, NOT for finding the worst things that could happen. I think it is important to have a basic knowledge of breast cancer and treatments. If  you can't look at the basic information without going into a panic, then don't.

I don't think anyone can tell you your length of life after diagnosis. No one can predict that, not even doctors. If you believe in God, then he does. You should ask your oncologist about your prognosis. He knows all the ins and outs about your cancer. We can't really figure out your prognosis, but like said before, getting cancer is not a death sentence.

If I were you , I would get a little notebook and start writing down all your questions for your oncologist and/or surgeon. I did that and it really helped. One, I could write down whenever a question popped into my mind; Two, I always had them together; Three, I had a record of all my questions so I wouldn't forgot during the appointment.

Cancer.org has  alittle information on what is good to avoid, but I am sure the ladies and gentlemen on here can direct you towards things.I would also ask your oncologist. 

This is a good place to learn, ask questions, vent, but ALWAYS talk to your oncologist before trying something.

I hope you keep coming back and I wish you the best in your journey.

P.S. It is always good to ask your doctors for you pathology reports. Some people get ALL their medical records and keep it in a three ring notebook.

chicaroo44
Posts: 18
Joined: May 2013

my pathology report shows estrogen positive 10%, progestrogen positive 10% and her2 positive (it reflects 40%) on the fish report.  i had the radioactive dye done the day before my surgery and when they did the mastectomy they pulled 3 lymphnodes from the left side,  all negative,  she pulled one from the right,  it was negative as well.  i have invasive ductal carcinoma in both breast.    all my margins were clear... 

chicaroo44
Posts: 18
Joined: May 2013

my pathology report shows estrogen positive 10%, progestrogen positive 10% and her2 positive (it reflects 40%) on the fish report.  i had the radioactive dye done the day before my surgery and when they did the mastectomy they pulled 3 lymphnodes from the left side,  all negative,  she pulled one from the right,  it was negative as well.  i have invasive ductal carcinoma in both breast.    all my margins were clear... 

camul's picture
camul
Posts: 2033
Joined: Dec 2010

You have triple positive, er+, pr+, her2+. Good thing I
s there are many different chemo options as well as being her2+, you will be able to get Herceptin.
That will all be determined by your oncologist. Triple negative seems to be more aggressive,although none of it is good, and any of them can be aggressive. Chemo sucks no matter what kind of cancer you are dealing with.
TMI is not a good thing. Just having cancer is overwhelming. Best bet is to writee down your questions and talk to your onco. Bring someone with you to take notes. After talking to the dr for a bit, all the info becomes confusing so having a second set of ears and someone taking notesnwilll give you the info later. Like someone else said the grade is usually on a scale of 1 - 3.
Wish you he best,
Carol

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

That's great that you have clear margins!  Congrats!

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network