May 29, 2013 - 10:01 pm
Hi! - I am sorry to post again a similar post, and will try to keep this as short as possible, but I am desperate for SOME kind of actual point of reference. I am totally confused.
A few weeks ago I was diagnosed HIV positive, along with HPV and anal warts - two very small ones. The "good" news is that my good cells were amazingly high and my viral load was amazingly low. They said I had one of the strongest natural immune systems they had ever encountered. Anyway, they did an anal pap smear but said it will take TWO MONTHS to get the results. They also started me on Aldera cream for the anal warts. I immediately started looking at sites like this one and honestly got MUCH MORE freaked out about the anal cancer possibilities than the HIV. It is kind of amazing that HIV is really now a very treatable long term reality. I have had no side effects at all from the meds (one a day) and they are saying positive people can expect essentially a normal life span if they care for themselves, and in some cases, are actually more healthy because they pay such close attention to their health issues on an ongoing basis.
Anyway - the thing that was / is freaking me out is the possibility of the anal cancer, because i have every symptom they say - soft thin stool, bleeding (very, very light), itching, and a general sense of pressure. And they said the insurance (which is good insurance) would not cover an anoscopy until there was a positive pap smear and that will take, again, two months for results to return. Unbelievable!
So - I called them today and kind of unloaded on them. The nurse practitioner got on the phone and honestly was very kind and patient. ACCORDING TO HER, the Aldera cream is very "tough" on the anal area, and can very often cause the exact symptoms I was describing, and, she says, that even if the pap comes back indicating "dysplasia", she said it literally takes a matter of years - her words - at least 3 or 4 - for it to transform to any kind of cancer. So - all of that to say, she was saying the probably everything was fine, and that even if it is, it will still be "super early detection" in two months, since I could only have been exposed to this recently since the HIV/HPV/warts are all the result of a very recent infection.
FINALLY - and thank you for anyone who is still reading this - I am trying to balance her "Calm down, this is not anal cancer, and even if it is pre-pre anal cancer, we will see it in two months and it will be an "easy" treatment" against (no offense) everyone on sites like this one who are saying "They said I had hemerrhoids and they don't know what they are talking about and you have to be seen and treated NOW!"
I realize all of this is subjective - but this is SO new and SO overwhelming that ANY perspective at all will be greatly, greatly appreciated. Thank you greatly.