May 21, 2013 - 12:52 pm
So I was still worried and sent my slides for a second opinion to a top university of Penn pathologist Dr.Zubair Baloch. He wrote a short note to my endocrinologist and said that the right nodule,(which he didn't know was my isthmus and right combined)shows oncocytic(hurthle cell) cels and few lymphocytes percolating among the follicular groups suggesting an element of chronic lymphocytic thyroiditis. He said his diagnoses are hyperplastic/ademomatoid nodule with oncocytic change.Focal chronic lymphocytic thyroiditis,and left lobe hyperplastic/adenomatoid nodule.
All of my thyroid blood tests have always been totally normal too.
When Dr.Kim gave me an ultrasound right before my recent FNA she said my nodule is the same size and it hasn't grown,I said well it's only been 3 months,she said well it's not growing fast.So today on the phone I rememinded her that she said that,and I now said well if it was an aggressive type of thyroid cancer it would be growig fast,and I said this nodule could have grown in 2-2 and a half years not 6 months because I had never waited more than a year to get a thyroid ultrasound for 3 years in a row at Penn. Dr.Kim said I don't know I've seen all types of cancers,Dr.Lupo does that mean I could still have an aggressive type like Hurthle cell and it could grow slowly? I thought that more aggressive types grow faster than the most common slower growing like papillary and follicular.
Anyway,I don't know what to do now,a woman on here told me she had a 3cm. something nodule with a majority of Hurthle cells with normal thyroid blood tests and the Afirma test came back more than 40% suspicious so she had half her thyroid out and this nodule was benign! I also read on the great site Inspire on their Thyroid Cancer Association forum,a woman had a 2cm inderminate nodule that everyone was concerned about and her Afirma test came out susicious,and she had her thyroid removed,it turns out that the 2cm nodule was benign but they found tiny papillary cancers all under 5mm that weren't even seen on the ultrasound! She also said that her surgeon told her he's had five patients that had a suspicious result from the Afirma test,and then when their nodules were removed and tested they too were benign! I'm beyond pettrified of any surgery,I haven't even removed my 2 uterine polyps found in August 2011 on a saline ultrasound,,even though I have been spotting in between my period off and on for 7 years now, and even though my own mother died of stage 4 of a rare aggressive type of endometrial cancer at age 49, because I haven't found anyone who will do it using an epidural as my cardiologist suggested and I communicated with many other women who have had it done this way including a woman at THe American Institute of Radiology and Medicine,she used to be an ultrasound tech herself,when I spoke to her two years ago she was 62,but in her 40's she had vaginal bleeding and had a uterine polyp removed with an epidural and not a D&C,but a hysterocsopy.
I also haven't had a colonoscopy even though I have bad pain in my bowel in the left side off and and on for 19 years now,and two gastrointerologists have suggested that I have a colonoscopybut they both think it's some type of irritable bowel condition,because I have an extreme terror of being put even into the twilight sleep for both of these procedures. So there is just *NO WAY* that I can have my throat slit open,a tube put down my throat and have general anesthesia!!!! So now what can I do?