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Good news!

AZANNIE
Posts: 372
Joined: Mar 2011

I had another six month check up with oncologist today - lab work was fine. I didn't have a PET scan this time but will have one in November and another six month check up. I see the colorectal dr next week for one of those "fun" exams. I'll be 2 years post treatment June 1. Hard to believe it's almost been two years and what a journey it's been...enjoying retirement now and raising chickens...

Ann

 

horsepad's picture
horsepad
Posts: 79
Joined: Apr 2012

congratulations!!!  I'm have ct scan in 2 weeks and God willing I will be posting NED. I was diagnosed in August 2011.   Looks like you have a horse from picture.  I have 3 horses and just started raising chickens.

AZANNIE
Posts: 372
Joined: Mar 2011

Thanks! Actually that's a buffalo statue I'm standing next to. Kind of hard to tell by the small picture. Picture was taken at a frontier town. I have 12 chickens. So instead of Anal Annie, I'm now Chicken Annie. Lol! Hope your scan goes well. I was diagnosed March 2011.

Lorikat's picture
Lorikat
Posts: 556
Joined: Jul 2011

Dont you jst love to hear your labs are good?  I will be two years post tx in October of this year.  After my Aug and November ck ups will o to 6 months between, like you!  Go us!

AZANNIE
Posts: 372
Joined: Mar 2011

Yes, always like to hear good news about labs! I really like my oncologist. He's very easy to talk to. I still get concerned when waiting for test results. I know it doesn't do any good to worry- easier said than done.

Ann

Marynb
Posts: 1134
Joined: Aug 2012

That is great news! Do you happen to know what lab work they do for anal cancer?

AZANNIE
Posts: 372
Joined: Mar 2011

CEA, CBC and another one that was some kind of differential. I should know by now. Don't have the paperwork for the next round because I'll have labs done at oncologists office. previous labs were done at another lab.

Ann

AZANNIE
Posts: 372
Joined: Mar 2011

Just looked on lab results. I always request a copy- CBC W/DIFF, W/PLT; comprehensive metabolic panel; CEA

Ann

Marynb
Posts: 1134
Joined: Aug 2012

Thanks Ann. i don't think they do those labs on me. Do you know what they are or what they measure?

AZANNIE
Posts: 372
Joined: Mar 2011

You're welcome!

CBC - white cells, platelets, lymphocytes, hemoglobin, etc.
Comprehensive metabolic panel - glucose, sodium, potassium, calcium, etc (kidney and liver function)
CEA - tumor marker

 

Ann

 

Marynb
Posts: 1134
Joined: Aug 2012

Thanks. Well, they definitly don't do those tests on me. I nev even knew there was a tumor marker for anal cancer. Hmmmm. I will put this on my list of questions for next week. I appreciate the info.

AZANNIE
Posts: 372
Joined: Mar 2011

The CEA has something to do with the colon. My colonoscopy was clear but guess my oncologist want to monitor it. My white cell count is still low and probably has something to do with the chemo. Will ask my oncologist next time if it will ever be normal again. He did say the count changes every 7 hours. Learn something new everyday.

Ann

mp327's picture
mp327
Posts: 2854
Joined: Jan 2010

Wonderful news to hear!  Congrats!  I know the 2-year mark is a big deal, so I hope you're planning to celebrate!  Hugs!

AZANNIE
Posts: 372
Joined: Mar 2011

Thanks! Haven't decided how I'll celebrate. See the colorectal dr Tues so hopefully he'll have good news too. I should be used to showing my behind by now. Still have problems with the "chute" but guess that's the new normal. Maybe one of these days they'll figure out how to prevent the stenosis or better yet eradicate cancer.

Ann

AZANNIE
Posts: 372
Joined: Mar 2011

Saw colorectal dr today. He said everything was fine. I need to have a colonoscopy in a few weeks. He wants to make sure everything is still ok. Haven't had a post treatment colonoscopy so kind of figured it was time. I'll have a different poop cocktail this time. Instead of Golightly (wrong name for that stuff) I get to have the miralax gatorade mix plus ducolax. I can hardly wait...

Ann

Marynb
Posts: 1134
Joined: Aug 2012

Good for you! Congrats! Just wondering, when was your last colonoscopy? Does the schedule change for us? I know the recommended is once at age 50 and then every 10 yrs.

I hope you found a fun way to celebrate!

AZANNIE
Posts: 372
Joined: Mar 2011

Thanks! My last colonoscopy and first one was March 2011. Didn't have it until I was 58 - long overdue. It was done while I was in the hospital - actually two days after biopsy. 

Haven't decided how I'll celebrate yet.

Ann

mp327's picture
mp327
Posts: 2854
Joined: Jan 2010

I've always done the Miralax/Gatorade/Dulcolax prep for my colonoscopies (of which I believe I've had 3 or 4) and it's not so bad.  It's no fun, but not bad.  I hope your scope shows no problems!

AZANNIE
Posts: 372
Joined: Mar 2011

I'm sure it will be a blast! If we can get through this treatment, a colonoscopy won't be so bad... will report back when it's over. Waiting to hear when it will be scheduled. No hurry, though...

Ann

mxperry220
Posts: 357
Joined: Mar 2011

My colorectal surgeon had me do the over the counter routine similar to you.  It worked REAL well...total cleanout.  I had a colonscopy in 2011.

Mike

cap630
Posts: 148
Joined: Jul 2011

Great news!  Two years is such a milestone.  So happy for you. ~Carol

AZANNIE
Posts: 372
Joined: Mar 2011

Thanks! It's been quite the journey. We made it and others will too!

Ann

lil lady
Posts: 36
Joined: May 2009

Celebrating 4 yrs NED..Had cat scan yesterday and NED so happy it's a great day

 

AZANNIE
Posts: 372
Joined: Mar 2011

Congrats on being 4 years NED!!! May NED continue to be your friend! Smile

 

Ann

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