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Phil64 One Point One Update

Phil64's picture
Phil64
Posts: 411
Joined: Apr 2012

It's been a little while since I've posted!

I have a lot to update on... 

Some of my last posts where during the Erbitux treatments and just before a follow-up CT / MRI.

The short update is that the follow-up MRI showed that the Erbitux was kicking the crap out of the cancer and that surgery was now an option. I had the surgery at U of M Health System on 4/19.  Surgery confirmed that there were only two tumors in my liver (they thought there could have been many) AND they were both removed with clear margins.  I've been rapidly recovering from surgery and I'm back to work and feeling good.

Yesterday I went to see the onc about follow-up chemo and I learned that my CEA has tested at 1.1.  Yes ONE POINT ONE.  That is the lowest in over a year and the FIRST TIME it tested in the normal range for me.  And given that my CEA seemed to correlate strongly with my cancer this is excellent news for me.

The onc wants to finish 8 more treatments of the Folfiri and Erbitux beginning in June (I already completed 4 treatments pre-surgery). The good part of that is I get to go chemo-free for a few more weeks. :-)

I have more detailed updates (with pics) on my blog.

Wow, After an orchiectomy (testicular cancer), radiation treatement, colon resection (colon cancer), lung resection (met of colon cancer), liver resection (met of colon cancer) I finally have a normal CEA...   I hope it will remain this way for a while.

God Bless you all!!!

Phil

 

AnnLouise's picture
AnnLouise
Posts: 276
Joined: Mar 2013

I am so happy for you and your wonderful results. You have been through a lot and you deserve the great news. Thinking of you ~ Ann

jasminsaba
Posts: 149
Joined: Jul 2011

Absolutely elated for you ... thanks for sharing this wonderful news with us to kick-start the weekend on a positive and grateful note. God is great.

maglets's picture
maglets
Posts: 2396
Joined: Jun 2006

that is rockin news! good work! so happy for you

 

maggie

Trubrit's picture
Trubrit
Posts: 1275
Joined: Jan 2013

CEA...   I hope it will remain this way for a while.

I hope it lasts WAY more than a while. 

It must feel so good to be back to normal. 

 Blessings!

Semira's picture
Semira
Posts: 264
Joined: Mar 2012

Such great news. Enjoying them with you. 

Happy greetings

Petra

janderson1964
Posts: 1496
Joined: Oct 2011

Absolutely fantastic news Phil. I am really happy for you. Enjoy the chemo break.

Chelsea71
Posts: 1167
Joined: Sep 2012

Best news I've heard in a long time. So happy for you and your family.

Chelsea

Goldie1's picture
Goldie1
Posts: 250
Joined: Sep 2011

Keep up the good work!

Ellen

fatbob2010's picture
fatbob2010
Posts: 359
Joined: May 2012

Phil,

Rockin GREAT news...Thank you for letting us know.

Art

annalexandria's picture
annalexandria
Posts: 2169
Joined: Oct 2011

Thanks so much for sharing with us.   AA

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

So very happy for you!!!

Annabelle41415's picture
Annabelle41415
Posts: 4183
Joined: Feb 2009

Awesome!!!!!!!!

Kim

joemetz's picture
joemetz
Posts: 493
Joined: Nov 2011

Phil

 

this is the BEST news all week.

thanks for sharing. 

 

It's got to feel so good to be able to share such good news. You've been through so much, and I pray that one day you get to post... "I'm cancer free!"

I know you will.  

 

go phil, go!

 

Joe

 

joemetz's picture
joemetz
Posts: 493
Joined: Nov 2011

your good news, is inspiration to the rest of us to Keep Fighting!

 

jen2012
Posts: 1184
Joined: Aug 2012

Excellent news!

Phil64's picture
Phil64
Posts: 411
Joined: Apr 2012

All, Thank you for the well-wishes!

I know Craig once told me that fighting this disease is like running a marathon. And I have a lot of respect for Craig and his wisdom. Therefore I am cautiously optimistic and regjoice in having some chemo-free time with my beloved.

And, at least for now, I am NED!!!  And it feels GOOD!!! :-)

I pray for many blessings for all of us fighting this ugly and complex disease!

And I'm thankful for every day on this great earth!

Make a great day everyone; IN SPITE OF cancer!

Phil

 

 

joemetz's picture
joemetz
Posts: 493
Joined: Nov 2011

Phil

can you share the name of your doctors and U of M?

 

thank you

 

joe

 

tanstaafl's picture
tanstaafl
Posts: 934
Joined: Oct 2010

We got my wife's pathology samples stained for CA19-9.  That being positive, with the initially elevated CEA, pretty much means to me lifelong cimetidine is beneficial to her mCRC status, helps prevent more metastases, and may help her immune system rub out a few more spots in conjunction with the other immune supplements.  We also monitor her CA19-9 blood levels.  Any surgery means more cimetidine.

Oops, my bad.  This reply was meant for Phil64 at http://csn.cancer.org/node/263921 on Oct 24, 2013.

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