May 16, 2013 - 8:35 am
I have now had results of my CA125 after the first round of Topotecan and unfortunately not great - up another 97 points to 423! So disappointing!! However this week I have had a further 3 infusions and in two weeks will have another test. I am hopeful I will start to see a downward trend at the end of this cycle. Does anyone else have experience of an initial spike on this chemo followed by a decline? Otherwise I am tolerating it quite well. Nausea under control, some increased neuropathy in my feet and fatigue - pretty much the usual. So far my hair is OK but I have noticed more loose ones over the last couple of days so am hoping it may just be a little thinning!
I have posted a new pic showing my hair after 12 months growth - I am enjoying it but quite happy to lose it if it does the job!!