May 12, 2013 - 11:19 pm
Hi all my appologies for it being so long since I've posted! It's been a rough 8 weeks. My second week out of treatment I ended up in the hospital for 5 days due to malnutrition and a reaction to one of the drugs I was on. A week later I was back in the hospital for 6 days for failure to thrive ( a fancy way to say that I wasn't getting better). My throat was so sore, I couldn't eat and I couldn't get enough nourishment through my PEG to allow my body to heal. Needless to say I was in no mood to post anything. I did read what others were posting on a daily basis though. I think I have finally turned the corner, I am feeling much better, I am able to use the PEG for my nourishment and am staying well hydrated. I also have finally started to eat some things by mouth. I've been lucky, my sense of taste has started to return, I am able to taste sweet and salty things, however my throat is still sore and I have very little saliva. What I am able to take by mouth is chased by large amounts of water. I still have bad days where I don't even want to get out of bed, then I have good days when I feel much better. This week has been a fairly good one. On Tuesday afternoon I have my first post treatment CT. I'd be lying if I said I wasn't nervous. My advice for others going through this; For those of you fresh out of treatment, don't expect everything to get better immediately, healing takes time and improvement should be measured in weeks not days. Hang in there things do get better. I appreciate all the information and openess you all provide. The personal experiences and information you share are invaluable in helping us all cope with this monster. It helps up realize we can beat this and things will get better. Thanks again and as always, my thoughts and prayers are with you all.