May 06, 2013 - 4:36 pm
I have pain in the left side of my neck. It feels kind of like a really bad cramp that won't let go. It seems to be making my ear ache and it hurts when I swallow but doesn't obstruct my swallowing. I think it is centered around the tube in my neck for the port. I first noticed the pain on April 16th when I got my first thoracentesis. When the nurse flushed my port before removing the needle, I got a bad pain in my neck and she said it was probably an air bubble. That pain has never really gone away and seems to be getting worse. I mentioned it to the chemo nurse last Thursday and she checked the chest x-ray from my May 1st thoracentesis and reviewed my April 24th PET scan but was satisfied that the port was properly placed so she proceded with my chemo. The port has been in place since July of last year. I really think something is going on with my neck and it's starting to worry me. I'm trying to hold on until my next appointment this Thursday but I'm due to see the NP and not the Onc so I don't know if she can help me or not. I was wondering if anyone else has experienced this problem and would appreciate advice about what to do.
May 9, 2013 I had a port flow study done today and it shows the tube from my port has a leak in it. I guess the fluids leaking out into my neck was causing the pain. Now I guess I have to get it fixed. I sure hope my chemo has been going where it needs to go???