May 01, 2013 - 7:17 pm
Hi - I have previously posted about my brother, we are in the UK and his sutent appears to have stopped working (had done very well on it for a year). We are seeing his consultant on Wednesday to discuss next steps, and it would appear this is likely to be enverolimus. He had radical surgery, removal of kidney and massive tumour, under one year later nodules appeared on his lungs, these were greatly reduced and under control with sutent but now needs an alternative drug to try and do the same job. At the moment contained in the lungs with no spread.
I have had really helpful and supportive input on this site from people re enverolimus, I guess my comment would be - I dont know what I dont know about what is out there. Here in the UK the treatment available stops with sutent. with our health system if sutent stops working, that is it! - our equivalent of your FDA has decided the other options are just too expensive. However, we are fortunate to have private health insurance and he can gain acces to next line treatment.
If money were no object (which of course it is, but let's pretend for a second), is there any evidence of a drug or combination of drugs we should be pushing for, or does enverolimus seem like the best next step?
Want to go armed with lots of questions for the consultant on Wednesday and you guys in the US on this forum really seem to know your onions! (British saying!!)