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Don't want to do chemo.

Natural Woman
Posts: 6
Joined: Apr 2013

I'm nearly healed from the mastectomy and I can't face chemotherapy.   My port surgery is coming up and it makes me sick to think of it and all the side effects of the drugs.   I'd rather not have chemo and take the easy way out if I do get sick.

 

I know this sounds crazy but I just can't face it.  I'm brave in every area of my life but medical.

Patti1967
Posts: 186
Joined: Mar 2013

You have to do whats right for you.  I finished chemo this past Dec for bilateral IDC.  I am now facing chemo again and trust me I don't want to do it, but I feel like its my best shot.  God bless whatever you decide.

Patti

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Just do whatever you feel is best for you.  I wish you the best in your decision in whether or not you take chemo.

Hugs, Leeza

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

...but it is doable.  There are meds/treatments for virtually all of the side effects, be sure and talk with your doc/nurse about every little thing you are feeling.  Don't wait for the next appointment, call or email...whatever gets you faster results.  And come here too...those of us who have 'been there done that' have lots of tips and tricks to offer.  We just need to know what is going on.

Regardless of all that, this is your decision.  And I will support whatever you decide to do. 

Hugs,

Linda

 

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

There are so many new meds that your onco can give you if you have side effects from chemo.  It isn't easy, but, I know you can do it, at least maybe try? 

Hugs, Megan

burcu123
Posts: 70
Joined: Jan 2013

If you need to do chemo, you got to do it. It is going to b edifficult but it will end.

Few tips

1. Manage your constipation well, anti-nausea medications are very effective, you do not keep vomiting anymore. However they are very constipating, keep senna, MOM at home do not go without a BM more than one day

2. ask friends family to bring in food

3. Ask bladder protection with mesna or aceptyl cysteine

4. Ask MetaNx during taxol so you do not get neuropathy

A lot of patience , just remember it will pass

mollyz's picture
mollyz
Posts: 737
Joined: Sep 2010

I agree with burcu123 you've got to do it,i know it's up to you but i for one don't want to lose another pink sister for something like this,come own I've been there done that and yes it's horrible but Im still here and i want you to be also.enough said !!cyber hugs to you right now~~MollyZ~~ 

SIROD's picture
SIROD
Posts: 2132
Joined: Jun 2010

No one wants to do chemotherapy but if your stage 0-3C, it might give you the best chance to never have a recurrences.  70% of women never do have another bout with it.  I certain worth at least trying.

I was diagnosed in 1994 and did have chemo and after I finished for the next 18 years did only hormonal drug therapies.  Suddenly I was out of options and I always said, I wouldn't do chemo again.  When my oncologist said it was either chemo or I could go home and not do anything.  The first words out of my mouth was "chemo, I will do it".  I never cried during all those years and I had 3 recurrences, some lasted long, 8 years NED from 2000-2008 on Arimidex.  Suddenly, I broke down and cried.  I didn't want to do it, but I didn't like the alternative either, at least I was going to give it a chance.  I am on Taxol.  I will say it's not a picnic but doable.  I lost my hair and I had a head full of thich hair, my pride and guess what.  It's not as bad as I thought, I kind like my headgear.  No fussing, just plop it on each day.

At least I hope you give yourself the best option but only YOU can decide what it is for you.

Best wishes,

Doris

disneyfan2008
Posts: 5340
Joined: Oct 2010

Thinking of you....I never had to make that decision. I can't even imagine-Like others said you have to do what is best for you and your well being!

 

Thinking of you..

Denise

Josie21
Posts: 338
Joined: Nov 2012

I had the choice of doing chemo because I had Stage 1 and my oncotype test came back low.  Because my tumor was 1.9 cm the people at Sloan Kettering pushed chemo, but my first oncologist said it wasn't worth the risk because of the low score and heart problems in my family.  At first I was relieved, but now 4 and a half years later I don't think I spent one day not worrying about my decision.  If it comes back I know I am going to be so angry at myself.  The thought of chemo at the time was inconcievable to me.  I was scared out of my mind.  The fear put me into a depression that lasted months.  I don't know what I would have done if I did not have a choice, but I know if it comes back I am going to wish I did it when I had the opportunity.

No matter what, it is your life and your choice.  People can advise you what to do, but you have to live with your choice.  Try and calm down and get all you information together.  I wish I was on this site when I had to make my decision.  The women and men here make you feel empowered to win the fight against this horrible disease.

We will all be here for you no matter what choice you make!!

Hugs,

Ginny

CypressCynthia's picture
CypressCynthia
Posts: 3956
Joined: Oct 2009

I don't think anyone wants to do chemo, but chemo is much more doable these days than when I first had in 1987.  I believe being adherent bought me my many, many years with this condition. 

Have an honest talk with your oncologist and find out why he/she is advising chemo.  Do you have an aggressive strain?  What Stage are you?  Etc, etc.

I consider myself a "natural woman" but I also consider myself sensible about my options.  Oftentimes, cancer requires tough medicines.  It is a hideous and sneaky beast.

 

jojo2
Posts: 28
Joined: Apr 2013

Hi natural, I have an aversion to medical and dental care do to a yearly cardiac assessment for my congenital heart defect. Ended up with ILC, had bilat mast because my Mom had BC in both breasts. I took chemo one day, hour or minute at a time to get through. It was tough but i lived through it. I really want/ed to live. I decided if I started crying I might not stop, so never began. I kind of went into myself and thought/prayed quietly. I had profound fatigue for a few days after so sleeping through it helps too. Read and research, my PA was a lifesaver as she perscibed Zofran every 8 hours when she heard i was nauseated 24/7. Made it much better for me. You can do this, you are stronger and more resilient than you know. I had to work due to husband being layed off and I think it was really good for me to keep going. I altered my hours and days working but keeping our health insurance was a good incentive. I think fear of the unknown and our own imaginations are more frightening than living through it. It is worth every moment of no fun to prolong my life. I hope you go for your best chances to live a long life. I have a new grand daughter, chemo was so worth it!  jojo2

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