Apr 29, 2013 - 10:48 am
Hubby is being released today. I'm so tired of the back and forth to the hospital and toting the kids around, so in some ways it will be easier, but with all of the running I haven't given much thought to how things will be at home. We have lots of stairs - I think he's planning on spending the days downstairs on the recliner and just climb the stairs for a shower and bed. The ostomy nurse said there really aren't any restrictions on the diet - mentioned avoiding spicy stuff and nuts and seeds. The rest she said to try and see what happens. We are fortunate to have a wonderful friend who has arranged dinners for us for the month of May - every other day someone will be dropping something off....but not sure what people are making.
Nurse also suggested getting lots of cheap washclothes and maybe just throw them away after using them to clean the ileostomy. As much as I like the idea of less laundry...that could get expensive fast! So any suggestions on alternatives (haha...thought I'd throw the word alternatives in and see what happens :)) for clean up. She said baby wipes are not good - that would have been ideal.
Also any suggestions on supplies for the ileostomy would be appreciated. He is using a two piece now, but the nurse said when the bridge is removed the one piece will probably be better. It's temporary but not sure how long - as little as 6 weeks, but that depends on the oncologist according to the surgeon.
Feeling a little lost in not knowing what is next at this point. Through chemo we had a plan, then stopped chemo to get ready for surgery and now ??