Apr 29, 2013 - 6:18 am
Hi my name is Jackie and this is my first time visiting your forum. I was dx with Lupus after a sudden illness in 2009, which then led to brainstem/cervical surgery last July which then I was told I have severe hypermobility of my spine. I have had awful headaches, low grade fevers, night sweats, severe tachycardia and low blood pressure for a few years now. I was dx with Dysautonomia in may 2011 at the Mayo Clinic. I had been having blood in my urine and left flank pain almost every time i have gone to see my doctor (every month). I was referred to have a PET scan due to ultrasounds showing a growth on my ovary but the scan lit up in my left side abdominal area and right breast.. An ultrasound confirmed that I have a 5cm by 4 cm mass in my left kidney. I have been on steroids for 4 years to help control the lupus nephritis. I was wondering wig anyone has been dx with a phenocromocytoma? Apparently my Dr says I've probably had it for a while and it could be the cause of my Dysautonomia issues.. Any advice would be greatly appreciated.. I'm now awaiting insurance approval for a CT Scan!