Apr 25, 2013 - 7:02 pm
Saw my onc today for regular appt which I almost cancelled since I had spoken to her after last CA 125. I didn't cancel because I began having rashy areas on my arms and chest and itching almost everywhere else even with no sign of rash. I also had been experiencing pain on the right side of my stomach in the waist area. The pain is mild and although I remember feeling it occasionally before it has been fairly constant for the last two weeks. It goes away then comes again.
Well, it is the area where the lymph node is. Funny, I thought my tumors were higher up after viewing the two petscans. I have never been good at anatomy. She asked if my urine ws dark, like tea and I said no. She checked my eyes for jaundice. She also stated the rash and itching could be related. She sent me for bloodwork and scheduled a petscan for Tuesday. Once again I took it in stride because I was expecting it.
I am pretty sure I will be starting chemo soon since the pain would indicate the tumor is causing a problem with my kidneys.
I am relieved that my cousin although still in a rehab center because of her wound, is doing well. She is finally in touch with reality again. Her rehab is ten miles from home so it makes it easier to visit than the 51 miles I was driving. Tomorrow I was supposed to take her to the wound center at the hospital in our town. I was apprehensive because she has been in a hospital bed for a month. I was afraid she would get hurt. Plus they wanted me to take a wheelchair which I have trouble lifting. I expressed my concerns but was assured help was available at both facilities. I was telling my doctor about how difficult the last month has been and she asked if there wasn't someone else who can help out? I said yes but I had told her son I would do what I could, as long as I could. My onc said I need to take it easy and not stress, she actually told me that last July. I told her I have felt good except fatigue. On the days I was too tired I would not drive to Stanford.
So I called my cousin's daughter and explained I cannot do it. I then drove to see my cousin and explained to her. She said she felt bad that I had been doing so much. I told her not to feel bad because I did what I wanted to do. She did so much for me when I went through treatment.
So, ladies, that is the latest on my current journey. Damn! I just had my hair cut and highlighted. I was working toward going blond for the first time in my life. I may not have done it but now that will have to wait.