Apr 25, 2013 - 6:29 am
A week ago I got scan results back, which gave no evidence of disease. This was my first NED; background diagnosed with RCC 5/1/2012; nephrectomy 6/19.2012: path: T1b (5.5 cm) grade 4 with Sarcomitoid differentiation.
Six month scans showed a solitary 1cm mass on the lung( upper left lobe); wedge resection on 2/5/2013 shows it to be similar to the primary tumor.
First scans after that were last week. They showed no evidence of disease. There was one area in the lung that the thorasic surgeon thinks is from the surgery; it is not metabolically active based on the PET.
I wish I can say I am curedl I do not have to worry. But I know that there is a likelyhood of further cancers. My Dr's strongly recomment adjuvant theropy so we continue with active survailance. The plan for now, which seems reasonable to me, is active survalence every three months for a few years. If I get lucky, the interval will increease. When something pops up, if it can be removed, they will cut it out (one lung met no problem...multiple lung mets in multiple lobes, well I need to breath).
As for medicines, IL2 is probably off the table; Sarcomitoid tumors apparently do not respond. But, they will worry about it at the appropriate time.
I still think I will die from RCC before I hit 60 (49 now). But, the next three months belong to my me, my daughter and my wife.
Time to play hard.
unfortunately, since I have more than three months to live, I need to worry about speeding tickets again.