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Tamoxifen - uterine cancer connection

Lwoolsgrove
Posts: 7
Joined: Apr 2013

Just curious if any of you fantastic ladies were ever diagnosed with uterine cancer after taking tamoxifen?

disneyfan2008
Posts: 5426
Joined: Oct 2010

DUE to Tamoxifen I had to have total Hysterectomy about 2 yrs into taking it. If all goes well I can stop taking in in Aug (my five year mark)

I was post meno and one night started to bleed-went the the gyno next day. Had surgery short time after and have a very enlarge uterus and anything he could take out!

 

Denise

disneyfan2008
Posts: 5426
Joined: Oct 2010

Prior to surgery every 4-6 mths i had an (NOT sure of actual name of test) INTERNAL ultra sound followed by a D & C...so though the hystercomty was a killer in the long run worth it..

 

Denise

Lynn Smith
Posts: 1265
Joined: Mar 2011

I haven't been dx with uterine cancer(already had my uterus out).I was told after my lumpectomy I need to take tamoxifin and having a hysteroctomy already was making me a good candidate to take it.Seems like alot do have problems.BUT several of my friends had no female problems.One is a 19 year survivor.The thing she gets are bladder infections alot.But tests are fine.

Lynn Smith      

Lwoolsgrove
Posts: 7
Joined: Apr 2013

Thanks ladies,  I had a large polyp removed and a d&c yesterday.  Also have ovarian cysts, assuming this is due to the tamoxifen.  Really appreciate your responses.

Lisa

CypressCynthia's picture
CypressCynthia
Posts: 4010
Joined: Oct 2009

I wish I had done tamoxifen longer.  I did 7 years which gave me an 18 year remission.  I never had any uterine problems and, believe me, my docs checked (biopsies, ultrasounds, etc.). 

I am now battling Stage 4 and that is 1000 X more difficult for me than tamoxifen. In the meantime, research is beginning to demonstrate that longer courses of tamoxifen may be the ticket for keeping the ER+ beast from recurring. 

Lwoolsgrove
Posts: 7
Joined: Apr 2013

CypressCynthia,

im so sorryNot hear your story.  My thoughts are with you while you win this battle.

 

lisa

sea60's picture
sea60
Posts: 2601
Joined: May 2010

hysterectomy after I developed dysplasia (pre-cancerous cells).

I was told that Tamoxifen after 5 years was not very effective. I need to research that more. Praying for you Cynthia.

 

 

Hugs,

Sylvia

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