Apr 21, 2013 - 12:48 am
I am in the Philippines and wondering about Drs competence.
I have extensive matastases involvement of the bones with evidence in arms, femurS, spine, shoulders, hips and almost all ribs. I am 81, have very strong bones, no pain, and lift weights regularly.
Uro A did the Biopsy three weeks ago. Only one large specimen was taken and submitted for reading. Gleason was 1 + 1. Uro was very upset about this reading and said Pathologist was incompetent, the result was impossible, and to get a second opinion. However, investigation showed that this is the most respected pathologist here and does work in the best hospitals. Uro A encouraged me to start ADT over castration. I do not like ADT side effects.
Uro B did my castration two days ago. I just had received the Biopsy report. He says he has never seen this kind of Gleason score in a patient with my advanced disease, but it is possible. He totally trusts the pathologist, but says to get it checked. Also, my prognosis changes for much the better. He wants to start Zometa, but I refused Chemo. I believe in doing nothing to weaken the immune system, and I do not like the Zometa efficacy or side effects. And, being as I now have no pain, do not want to chance that the Zometa might do something to change this. Uro encouraged castration over chemical castration. I agreed.
Uro C says I have probably had this cancer for many years. I think probably true, as my PSA has been very high for at least 15 years. I was 4 for a long while, went to 8 and I stopped testing. About 8 months ago, it was 34, but I did nothing until it reached 100. Uro C says that something else will get me before this cancer does, and I should live a long time. (Hooray!!!)
Before Biopsy, I had a bone scan. Uro A and Uro B and my oncologist said to expect Gleasons of 8,9, or ten. I think they all assumed this, especially Uro A. Why would Uro A only take one sample??? I have never heard of this. And when it tests 1+1, of course, there will be questions about other sites. My prostate is large and hard and tumors are felt with the DRE. Perhaps Uro A just figured that I would be a 8,9, or ten, so why should he bother wasting time and taking a lot of samples.
For the last 50 years, I have been a Vegan and my diet is very similar to the anti-cancer diet. I am very healthy and strong for any age. The body scan shows no involvement outside of the bone metastases.
We all know that there is no black and white with this disease. Different Drs. have different ideas and treatment methodology. However, my case seems to be well outside the norm. I would greatly apreciate any help as I have exhausted my sources here. Love, Rakendra