Apr 18, 2013 - 8:30 pm
What a crazy day I had, I had brain MRI by 11:30. At 2:30 my nurse calls with bad news that I have multiple brain mets and by 3:15 I had emergency appointment with the radiologist, got fitted with helmet, and I will start whole brain radiation tomorrow! I actually went to work after all this (I have small clinical social work practice)
Wow, how my life changed within a few hours. Don't believe that upsc doesn't go to the brain. My oncologist told me awhile ago that it goes to lungs before brain. In my case the fluid around heart & lungs both showed cancer in January so that's how it ended up in brain.
The plan is to get 20 radiation treatments and stop chemo for now. My husband will drive me everywhere because of risk of seizures. Thank God for my wonderful husband! I will take decadron daily to control brain swelling.
i discussed quality of life. Doctor said that there is no choice about treatment-without it I would have stroke. He seems to think I will have decent quality of life but may have some shortterm memory loss.
So it's one day at a time- one hour at a time. God bless all of you. I appreciate all your prayers as always,
love, Mary Ann