Apr 18, 2013 - 4:00 pm
So sorry to hear about your dad, how horrible for him to be diagnosed with this dreadful cancer and for all of you. I know this is a journey you all do not want to be on.
This month (April), just so happens to be Esophageal Cancer Awareness Month. So many have never heard of Esophageal Cancer, I know I never did until my dear brother was diagnosed with it, stage IV, inoperable in 2010, he was only 51 at diagnosis. My brother fought hard to the end, he went Home with the Lord November 2012, 5 months ago.
I knew nothing about this cancer but when my brother was diagnosed I hit the internet to find out whatever I could and I found this site and met some very knowledgeable people who helped me tremendously.
Here are some links from reputable surgeons and hospitals that are familiar with Esophageal Cancer and the Minimally Invasive Esophagectomy, from which I hear is the best type of surgery to have.
Some information I hope will be helpful to you:
It is highly unusual for surgery to be scheduled first prior to having pre-op workup with neo-adjuvant chemotherapy and radiation. In the case of a "T3N1M0" diagnosis, this indicates that the tumor has invaded all four walls of the Esophagus and has also infiltrated at least one or two lymph nodes nearby.
· The chemo and radiation is administered to help stop any further spread to other organs. Once it has entered the lymph nodes, it is free to travel to another major organ. If it reaches another major organ, no surgery can be performed. In that case only palliative measures of chemo and radiation can be given.
"… We finally have staging: Stage 3, T3N1M0. The oncologist is recommending surgery first and then chemo and radiation. She said that chemo and radiation before surgery is an approach they are taking in Europe but not here in the states. I am confused by this because most of my research says chemo/radiation first. I will continue to research.
They meet with the oncological surgeon Friday. I have asked to be teleconferenced in. I have concerns that the surgeon he was referred to is not an esophageal expert. He apparently is an expert in pancreatic cancer (in fact he was Steve Jobs surgeon) but I can find no data on his experience with esophageal cancer. …"
Here is a link that indicates tri-modal treatment has proven to be the best course of action when one is diagnosed with EC.
Although Steve Job’s doctor is an expert in Pancreatic cancer, that doesn’t qualify him to be an expert in Esophageal Cancer.
It's always good to get a SECOND OPINION. I so wish my brother had done this at the very beginning.
you can always research any doctor to see his level of expertise by accessing the web.
Their biography should include several medical papers relative to the subject of Esophageal Cancer that have been accepted for publication. This is one way to judge the level of their expertise. Both Dr. James D. Luketich and Dr. Ninh Nguyen will have "exhaustive" lists of articles that have been selected by the medical community for publication.
See if you can schedule a SECOND OPINION with Dr. Ninh Nguyen, just call his office and ask who they know in Stanford or UCSF that performs the MIE, and who would be their recommendation. It’s as easy as picking up the phone and calling. Many with EC on the West Coast knows about how great Dr. Nguyen is. He performs the laparoscopic procedure (MIE).
Here is a link from UCIrvine with video narration explaining Esophageal Cancer and treatment.
I will try to add more information as soon as I can.
Hope this helps!!