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Test are back

ppurdin's picture
ppurdin
Posts: 935
Joined: Jul 2009

Thanks everyone for the replys.Biopsies showed no Cancer.Thank God.Their is a large mass in wall of Colon though.He still says this will not cause pain.He told me to come back in two years unless I had pain constipation or swelling.I said well I am having all that now.And that is why I been going back to him for several months now he hesitated and said well if it gets worse.I ask what is causing the pain ?He said he thought it was stomach spasems.he said 9 out of 10 masses like this is Cancer.MyDad had colon cancer .I have had Breast Cancer.Am I wrong in thinking he should be paying more attention to my complaints?I am still having problems and pain.I will talk to my Cancer Dr. Tomorrow and see what she thinks.This pain has went on for months in my stomach.Any suggestions would be appriatted.Thank you.

Fucc
Posts: 84
Joined: Sep 2012

Great news! 

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

more attention to your complaints.

You were told you had large mass in the wall of the colon that was confirmed as not cancerous through a biopsy ... did your doctor tell you what the large mass was?

The fact that your doctor told you to come back in two years even though you are in pain is very concerning to me. You deserve to have a doctor who will listen to you when you say that you are in pain and try to help you. I think you should try to find another doctor if you can.  Are you limited in switching doctors because of some medical insurance issues or travel complications?  Is this a primary care physician who ordered the biopsy and is passing on to you the test results?

Do you have a friend or family member who accompanies you to your doctor visits?  So much happens sometimes in a doctor visit that we often leave puzzled and unsatisfied because a great deal of information is passed on in a brief period of time.

I understand that you have relief that the doctor said that the large mass was not cancerous, but I really think you need a second opinion to determine what is going on and why you have so much pain.  

I am so pleased that you have an opportunity to speak with your oncologist tomorrow about your situation. Before you speak with her ... perhaps try writing down all your questions and then go over them with her one-by-one.  Be sure that your questions and concerns are answered.

You have had a challenging time lately with the pain, the tests, and the waiting for the test results ... we are here for you to provide support.

Best to you in your conversation tomorrow with your oncologist. -- Cynthia

 

PatchAdams
Posts: 272
Joined: Nov 2011

No matter what his biopsy said, since he was unable to remove the whole mass and TEST the whole mass, I'd opt for a resection to have this removed.   Find a good surgeon and go in for a chat.  

Best of luck!

Trubrit's picture
Trubrit
Posts: 1284
Joined: Jan 2013

I would most definitely get myself a new Doctor.  

I'd be pusing for the surgery, even though surgery isn't the best, to get rid of a large mass, cancerous or not, seems like it would bring your great releif. 

Good luck as you go forward. I wish you less pain, but really hope that you find a better, more thourough Doctor. 

ppurdin's picture
ppurdin
Posts: 935
Joined: Jul 2009

One thing I know for sure is it is time for a better dr.Thanks for all your replys.I don't think my oncologist will be happy with the gastroligist.I will keep in touch.

ppurdin's picture
ppurdin
Posts: 935
Joined: Jul 2009

One thing I know for sure is it is time for a better dr.Thanks for all your replys.I don't think my oncologist will be happy with the gastroligist.I will keep in touch.

ppurdin's picture
ppurdin
Posts: 935
Joined: Jul 2009

One thing I know for sure is it is time for a better dr.Thanks for all your replys.I don't think my oncologist will be happy with the gastroligist.I will keep in touch.

karen40's picture
karen40
Posts: 208
Joined: Aug 2011

I’m glad to hear that you made plans to talk to your oncologist and that you’re getting rid of that GI doctor. May I also suggest that you seek out a consult with a reputable colorectal surgeon. Like you, a large mass (softball size) was found during my colonoscopy.  Biopsy of a golf ball sized sample showed no cancer.  My GI doctor forewarned me that just because cancer was not found in the sample does not mean that there is no cancer.  He explained that cancer could be growing underneath the sample he took.  Cancer or no cancer, surgery was a must. The biopsy after surgery determined it was cancer. I was diagnosed with stage 2,T3 NoMo Grade 2 Adenocarcinoma of the rectum .  My tumor was almost through the rectum wall. I don’t want to even think of what the consequences may have been if my GI doctor told me to just hang in there until it got worse. Oh, that gets me mad. I am currently NED. I encourage you to go for a second or even third opinion. My thoughts are with you. I hope it turns out you are the 1 in 10 without cancer.

Karen 

ppurdin's picture
ppurdin
Posts: 935
Joined: Jul 2009

Thank you for your reply Karen.I am anxious to talk to my Cancer Dr. Today.And yes I will get another appinion for sure.The more I think about this Dr. The more upset I get.I have lived with severe pain in my stomach severe constipation bloting and he is telling me to wait two yrs. For colonosopy.All he wants to do is the colonoscopy.I had made appointment with a different Dr. After the second one this year.Only then did this Dr. Seam concerned .And he called me and worked me in right away.I think it was his pride not him caring if I was ok.All these symptoms started like over night about 6 months ago.My Cancer Dr. Will be more concerned .She is a very caring Dr.This Dr. Makes me feel like it is no big deal.It is a big deal to me.I don't want to let it go until it is to late.I will post what I find out today.I am glad you are ok now.Thanks again.

smokeyjoe
Posts: 1428
Joined: Feb 2011

I had a complete blockage and they took a sample and sent it for path ..... that came back "precancerous" .....  I had a tumor the size of a fist blocking my entire colon, with mets. .... Stage 1V colon cancer.     Don't want to scare you, but path. can come back and be wrong, it was in my case.    They didn't know what it was till I had surgery,  they figured it was ovarian cancer blocking my colon .....  nope colon cancer spread to my ovaries.   Get to another doctor who will investigate this further, before it spreads .....  just my two cents!!!!     

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