Apr 15, 2013 - 8:51 pm
Made it through the three cycles of induction TPF fairly well. Lots of fatigue and chemo brain during first 7-10 days during start of each infusion. No nausea or vomit and just one trip to ER to get hydrated.
Today, started first of standard 35x2gy daily radiation and weekly chemo load of carboplatin. Both went fine, chemo infusion nothing new in terms of experience; the radiation went really fast, maybe about 6-7 minutes total being bolted down, table and equipment adjustment, then the two 70 seconds continuous rotations of the radiation thower arm (what is that think called anyway? LOL). FYI - The new machine assigned to me behaves differently from that described here. There is no clicking, just a humm-buzzing continuous when it is in motion. It makes one clockwise rotation, then stops for some seconds, then one full counter clockwise rotation and that's it. Takes some seconds for it to shutdown/reset and the techs to return from their nuclear bombshelter to unbolt me and I'm done.
My method to 100% comfort is to not even try to move my head once bolted in. To me, I don't experience or notice any restriction as long as I remain very still. If I try to move even one millimeter, there is notice resistance which is not particularly good psych-wise, no physical discomfort. I lightly grasp a ring with my hands and try to relax my upper body. The other thing I do is to close my eyes. I have not asked to have eye holes cut out since I prefer to keep them closed most of the time anyway. Keeps me the most relaxed during the few minutes I am on the board and clamped down.
All in all, it is such a brief experience with such little discomfort, I'm onto planning to maneuver around the next landmines.