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Stopping Chemo updated

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Thank everyone for your kind words and support.  They truly mean so much to me.   I came to tHe doc to explain my plan.  He said that we can lower the dosage but that he thinks we can get to remissission. If i stop chemo i have six months to live.   My husband wants me to keep fightening for him our daughter.   I said fine because i canny bear their pain - my husband and daughter.  He also oeder me Cymbalta and something to increase my appetite.   Im back a biy reluctant back in the fight

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

and his willingness to work with your dosage. I will say one thing ... I doubt that he knows that you would have six months to live as that is truly unknowable.  If you feel comfortable with your decision then give it a try.  Always know that ultimately, I feel at least, that these decisions are in your control.  The love and support of your family and those here can help you move forward. Very best to you. -- Cynthia

jen2012
Posts: 1195
Joined: Aug 2012

Your post is heartbreaking Vicki.   This damn disease is so tough on all involved.    I think it's encouraging though that the doctor still thinks there is hope.   I hope the lower dose makes things easier and you reach that remission.  My prayers and thoughts are with you and your family.

Lovekitties's picture
Lovekitties
Posts: 2927
Joined: Jan 2010

Life with cancer is definately a rollercoaster.  Each day can bring new information which influences our decisions.

I am glad that your doc is willing to work with you to potentially improve quality of life while staying in treatment, and very glad he still believes remission is possible.

Prayers are coming your way that all works well and remission becomes a reality.

Marie who loves kitties

coloCan
Posts: 1845
Joined: Oct 2009

you might want to find out more about Labetuzumab as a potential replacement for irinotecan with less side effects

www.pipelinereview.com/index.php/2013041150670/Antibodies/Immunomedics-Reports-First-Results-of-Labetuzumab-SN-38-in-Colorectal-Cancer.html

 

danker
Posts: 735
Joined: Apr 2012

Only God knows when you will die. The docs are only guessing based on experience of others. You hang in there and take it a day at a time.  Best of luck to you!!!

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Hang in there...my heart goes out to you...this was still a difficult decision.  I will still keep you in my thoughts and prayers.

alex

Sundanceh's picture
Sundanceh
Posts: 4268
Joined: Jun 2009

:)

Annabelle41415's picture
Annabelle41415
Posts: 4231
Joined: Feb 2009

It's got to be a very difficult decision, but I'm glad that your doctor has given you hope.  Hoping that you tolerate the reduced treatment well.

Kim

Chelsea71
Posts: 1170
Joined: Sep 2012

I like this doctor! I really think it's possible that just a change of dosage could make all the difference. Please let us know how the next session goes.

Chelsea

maglets's picture
maglets
Posts: 2403
Joined: Jun 2006

oh you are so brave.....my heart goes out to you.  All the very best.....I pray that this dose will be tolerable to you.....

what a strong woman you are.....best love, mags

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Thank you for all the beautiful support everyone. Big hugs!

AnnLouise's picture
AnnLouise
Posts: 276
Joined: Mar 2013

I hope things become easier for you....you are so strong and you have all of our support....~ Ann

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

You hang in there. Your doctor must see something coming out of this, which is a positive. Hopefully the lower dose will make it a little easier, so stay strong and think positive!

Judy

 

vinaykumar
Posts: 66
Joined: Dec 2012

please consider doing a  combination of low dosage chemo with other herbal / TCM based options....they have worked for some here ...they might work for you !!

i have also read up about yance's protocol recently...you might want to look at that

Kathleen808's picture
Kathleen808
Posts: 2299
Joined: Jan 2009

Hope is a good thing my friend and I am glad that the doctor shared some with you.  Dick had to cut back on chemo about 1.5 years ago, it was just too much.  I hope and pray that this adjustment is good for you. 

 

Aloha,

Kathleen

janderson1964's picture
janderson1964
Posts: 1565
Joined: Oct 2011

I was sad when I read your post about stopping chemo. I understood but didnt know how to respond. Now I can say that I am glad that youa good doctor rather than some of these doctors that I read about who basically give up on thier patiants. I refused the last 2 rounds of irinotecan after my first recurrence but I was NED so it was a much easier decision. I almost stopped early after my second recurrence but my friends and family talked me into doing the last 2 rounds.

You have hope and a lot to fight for. You are in my thoughts and prayers no matter what you decide.

Jeff

olgrizz's picture
olgrizz
Posts: 16
Joined: Apr 2013

As you can

see you are not alone. Keep up the good fight. We are all in this together.

PhillieG's picture
PhillieG
Posts: 4667
Joined: May 2005

I'm glad you're giving things another try. It's not easy but like me and many others with kids, they really can be a great source of motivation and inspiration during tough times...

I'm never crazy to hear when a doctor gives the "x months to live" nonsense. Ask him if he can tell me who's going to win the World Series this year so I can place my bets early!

Hang in there, all the best

-phil

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

Vicki you are so strong!  You are not alone. I think many of us think of throwing in the towel from time to time.  Sometimes we just need a break or an adjustment to our chemo dose to keep us moving towards our goal of remission or NED. My best to you, Ron

thxmiker's picture
thxmiker
Posts: 1213
Joined: Oct 2010

We are sending our thoughts and prayers.    The fight never ends even if we decide quality of our life is better with or without chemo.  keep making the decision for the best quality of life for you and your family.

 

Keep up the good fight, and go slay some dragons!

Best Always, mike 

Trubrit's picture
Trubrit
Posts: 1401
Joined: Jan 2013

Six months is a ball park figure. I know someone who was given six months, and lived on and on for years.

We all want to be that person. I Pray you are that are that person.

Blessings to you and your family. 

YoVita's picture
YoVita
Posts: 541
Joined: Mar 2010

It's still your decision.  If you do decide to reduce your dosage, I hope it's more tolerable for you.  My heart goes out to you.

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 445
Joined: May 2012

I hope the lower dose is more tolerable for you. I'm glad the onc was optimistic about you getting to remission. Everyday is a choice for all of us. Good luck, I hope you are feeling better now.
Sandy :)

thingy45's picture
thingy45
Posts: 575
Joined: Apr 2011

Vicki,

Really HOPE is all we have. Nobody knows when the glas is empty.

Take the hope and find the strength to keep going, you are loved by many.

Hugs and prayers are being send to you

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

I had stopped chemo a few weeks ago, my liver blood tests were coming back worse every time and I decided I'd rather die a slower cancer death then a quicker liver death.  My Onologist had a talk with me two weeks ago and convinced me to go back on it, he said my PT scans showed great improvement and he had contacted the liver surgeon to meet with me.  He said when my liver functions get too elevated we can stop chemo for a couple of weeks and start back on again.  

I too changed my mind and went back on the chemo.  Doing either, the stopping or continuing is a hard decision, and I just wanted to let you know you aren't alone, and I too did the same.

We can always hope to hang in there for the next big advancement in the cancer fight.  I had started researching what they were doing at a Pennsylvania University where they have been testing on humans a new trial of using your altered genes that target the cancer, it sure sounds hopeful.

You have our complete support Vicki.

Winter Marie

dmj101's picture
dmj101
Posts: 526
Joined: Nov 2011

Vickie I am so happy you are back in the fight.. I understand the reluctance... but know we are all here pulling for you in what ever decision you make..

Love you Donna

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