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Maglets

Cathleen Mary
Posts: 563
Joined: May 2011

 

I seem to remember from another post that you start testing again tomorrow. Know that you are in my heart and prayer. Courage, my friend.

Hugs,

Cathleen Mary

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maglets
Posts: 2404
Joined: Jun 2006

how very kind of you to remember.   Yes today and frigtened like crazy.  On Friday a dear friend asked me to go with her to her first ocology appoinment and be her ears.  We were in  the hospital for three hours and the word was delivered that she is stage 3 aggressive breast and willl have to undergone some very aggressive chemo and rads.  The onc happened to be mine.....Cathleen Mary...it was just as if I were receiving the news.....i wanted to ask if anyone here has been in the this situation....you dearly want to help a friend but i wonder if it is all just a little too close to the bone right now.

so because of my many many ct scans.....they are trying to reduce radiation now....so this morning I will have abdominal ultra sound then chest xray and and blood draws for cea......

wish me luck.......and away we goooooo

love to all

mags  or mary margaret

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johnnybegood
Posts: 1122
Joined: Oct 2008

and prayers are with you today Mags.that is very interesting about the many ct scans i have always wondered how many of those we can take as i am on chemo for life so i guess i would be on cts for life also.i have a dear friend at church who was dx with breast cancer hers is not so bad but i know how you feel.we will be waiting for the update luv ya mama mags....Godbless...johnnybegood

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janderson1964
Posts: 1579
Joined: Oct 2011

You are always in my thoughts and prayers. especially now.

PatchAdams
Posts: 272
Joined: Nov 2011

Wishing you luck and whispering a prayer for GREAT news for you today. 

I know  you want to be there for your friend........  that's a hard call. 

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Maxiecat
Posts: 524
Joined: Jul 2012

Mags...you will be in my thoughts and prayers today.  The ultrasound is a piece of cake...try to imagine it is as a heated massage when they put that warmed up gel on!  I hope you get great news.   Sometimeto, the actual scan isn't the hardest part..it is the waiting for the results.

Alex

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Lovekitties
Posts: 2937
Joined: Jan 2010

Dear Mags,

Wishing you best results on all tests.

I can understand your feelings at the appointment with your friend.  I have been with my sister thru her surgery, onc appointments and treatments for Stage 4 uterine cancer.  Emotionally it is as if it were me.  While extremely difficult, it is just something I have to do, not because anyone asked or insisted, but because she needs the support. 

I have learned so much about dealing with cancer from all who have been here on the board that I feel it is important to use it wisely and share with others as I can.  We soldier on!

Many hugs and much love,

Marie who loves kitties

jen2012
Posts: 1198
Joined: Aug 2012

Good luck mags...will be looking fr your "good news" update.
Im sorry about your friend...if i were in her position, i would so appreciate a friend who has been through it and understands the language. Id also understand if that friend couldnt be with me. Do what is best for you...but i have a feeling when you get your good scan results you'll be more ready to help her through this.

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

Good luck Mags!  You are in my prayers.

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lilacbrroller
Posts: 278
Joined: Jun 2012

Hope it all goes well.  Kiss

 

Karin

danker
Posts: 737
Joined: Apr 2012

Good luck with your various tests. Hope you get nothing but good news-without waiting forever for it!!!

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ron50
Posts: 1281
Joined: Nov 2001

Thinking of you and wishing you all the best,BIG hugs from downunder...Ron.

steved
Posts: 836
Joined: Apr 2004

Mags- no real similar experience myself of re-experiencing some of the traumas of diagnosis vicariously through others but is makes sense that it may well retrigger many of those feelings associated with your original experience. Ipersonally hate going to the hospital I was first diagnosed with an dluckily have had treatments moved to a new one.

Do want to wish you the best of luck with scans and tests this week. Good they are ooking out for interests in terms of radiation exposure- after 7 years of scans there is a risk of it being more of a problem than a solution. Please let us know when you the results (we vicariously share your scanxiety each time round too!)

steve

Chelsea71
Posts: 1170
Joined: Sep 2012

Good luck, Maggie. Will be thinking (and worrying) about you today. I think it will be good news again. You just have to get through the waiting. Let us know when you can.

Chelsea

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Sundanceh
Posts: 4294
Joined: Jun 2009

Big hugs, Maggie May!

Smile

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AnnLouise
Posts: 276
Joined: Mar 2013

Sending positive thoughts for good results.....~ Ann

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wolfen
Posts: 1194
Joined: Apr 2009

Mags,

All will be GOOD. We're tough ol' broads, remember.

Luv,

Wolfen

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devotion10
Posts: 642
Joined: Jan 2010

and when you come home you can breathe a sigh of relief. -- Cynthia

PS. Your name is just so lovely, had to use it.

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Annabelle41415
Posts: 4248
Joined: Feb 2009

You are in my thoughts and prayers that all is well.  It's surprising how other people go about their daily lives nothing even giving thought to the anxiety that this disease can cause.  Wishing you all the best.

Kim

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maglets
Posts: 2404
Joined: Jun 2006

oh my goodness....just gobsmacked by all your kind words.....thank thankyou  each and all

arrived at hospital at 9 and was met by very young woman 20?? who said...." hello I am a student and I will be doing your scan and then it will be checked" right !!! so you have to know that I am a retired teacher and the thought of giving a young gal a go was immediately good with me but a wee bit of something was niggling.  she started with the wand digging and grinding and after 45 minutes of pain the real tech came in and looked at her images.....obviously they were not up to standard because the older tech started all over again.  she looked down at my old abdomen and said...."wow they have really really beaten you up haven't they?"

to make a long story short...the older tech said.....you know what ....next time stage IV.....this is not a teaching hospital....just say nope I will skip the student...soooo 3 hours later I was done chest xray and cea;s drawn and the dreaded ultrasound finally done after 2 hours......now the wait.........and wait and wait....

 

I feel totally overwhelmed tonight with the Boston incident.....

thank you my dearest friends....hug and hug and hug.....mags mary margaret

maglets's picture
maglets
Posts: 2404
Joined: Jun 2006

just got a call from my primary care doc to say that radiologist did not like ultra sound on liver.....she saw no mets but she does not feel it is a complete picture and the ct is better.  I guess I knew that ...still trying to reduce rads....another 2 weeks till I see onc and will get CEA's.....they have been pretty dependable for me

so what do you think? radiologist said she saw no evidence of mets but the pic was incomplete....I think I will try to go with....GOOD this is good at least until further word comes down the tube...

 

mags

jen2012
Posts: 1198
Joined: Aug 2012

I'd go with GOOD!  They didn't see anything, but they want to make sure.  Try not to worry and celebrate no mets!

Trubrit's picture
Trubrit
Posts: 1441
Joined: Jan 2013

Can you now call your Onc in a few days to see what your CEA is?  I would be bugging them until I got my results. I'm sure it doesn't take two weeks.

As for your choice to have a CT scan, I can't even begin to help you there. I pray that you can make this decision with faith and hope.   

Sorry that you had to undergo a more traumatic exam at the hands of a student, but even though it was uncomfortable I bet she learned something, which is what students are all about. 

Blessing to you as you wait, wait, wait. 

janderson1964's picture
janderson1964
Posts: 1579
Joined: Oct 2011

Take it as good. We have to take what we can get. It sounds like there is no need for concern. They just want to be thorough.

PatchAdams
Posts: 272
Joined: Nov 2011

This sounds like good news to me!  Since your CEA has always let you know if something was brewing,  get those results and celebrate 4 1/2 years NED!

 

Patch

Chelsea71
Posts: 1170
Joined: Sep 2012

I'm not surprised. It's great that your onc wants to reduce radiation. Not surprised that the radiologist is dissatisfied with the picture. I would be happy with this news. Are they going to do a scan or just go by the CEA?

Congratulations
Chels

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KathiM
Posts: 7879
Joined: Aug 2005

I think....I'm DANCING!!!

 

Hugs, kathi

Lovekitties's picture
Lovekitties
Posts: 2937
Joined: Jan 2010

Was the radiologist who did the ulta sound aware of the surgeries you have already had on the liver?  I don't know anything about how it grows back, but have to believe that there must be some difference from the "orginal" vs the "new".  Maybe that has some influence on the picture gotten.

The fact that no mets were found, it more than good...that is great!

Now if it were me I would be calling daily to find out about CEA, just to help get the picture in perspective.

Wishing you only better and better news as more info available.

Hugs,

Marie who loves kitties

olgrizz's picture
olgrizz
Posts: 16
Joined: Apr 2013

Good is most definitely good in my book. :-)

maglets's picture
maglets
Posts: 2404
Joined: Jun 2006

there is no doubt when the radiologist looks at the liver they can see it is resected.....strange shape and lots of things are not where they are supposed to be.  apparently there is a lot of metal hardware floating around holding things....Embarassed I guess the ultrasound just does not give a clear pic of either the liver or the colon....

I am soo soo bad at calling anyone....don't want to bother anyone....

I am more relaxed tonight than last so just going with that......thanks to all of you

 

mags

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

you get good news!

prayers

judy

Kathleen808's picture
Kathleen808
Posts: 2304
Joined: Jan 2009

Beautiful Mags,

I continue to pray that all is well for you.  You do have an incredible amount of patience to have put up with the student. But, I agree with the experienced tech.  No need for you to go through that again. 

Hoping that some day we can sit down and have some tea together.

Aloha,

Kathleen

maglets's picture
maglets
Posts: 2404
Joined: Jun 2006

dang it all...yesterday was such a bad day.  My friend with breast cancer asked me to be with her for the results of her ct scan....sure enough liver mets.....the onc has halted all hopes of chemo until she gets these mets sorted out so next  a liver biopsy....can anyone tell me about liver needle biopsy???? painful??

then I am sitting there in shock and the onc turns to me and says...."i am reviewing your latest ultrasound"...long story short she is not going to let the ultrsound stand....because the radiologist rejected it ....the onc has called for another ct scan....about my 20th.....I must glow in the dark by now.

you know that little thrill you get when testing is done....well it's gone and my heart is breaking for my friend and I can thoroughly say this morning that I HATE CANCER...

thanks for listening.....mags

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janderson1964
Posts: 1579
Joined: Oct 2011

I am sorry that you have to go through all of this.I have probobly had about 30 PET CAT MRI not to mention several chest x-rays and evan a bone scan. I learned that I would rather take the radiation. 2 years ago my onc an I agreed to wait a year in between scans after I was NED for a year. As a result I had an 8cm liver tumor that grew out of my liver and attached to my diaphram and peritoneum. I shouldnt have waited that long. I would rather never do a scan again. But scans are part of life when you are stage IV. I learned that I will take the radiation rather than risk catching a recurrence too late. I was fortunate that I was still operable but I cant help thinking that had I done a scan earlier other organs might not have been involved.

You are in mh thoughts and prayers every day.

Hang in there.

Chelsea71
Posts: 1170
Joined: Sep 2012

Awe Mags, I'm so sorry you had such a rough day. I don't think a liver biopsy is painful. People are often apprehensive about the liver biopsy due to the possibility of seeding, if in fact it is metastasis.

I think it's great that you're having a ct scan. I do understand your concerns about radiation and the dye. Steve has likely had fifty scans in two years. Not an exaggeration. The ct will be more accurate and you will know for sure that there is nothing that requires any attention. You don't want to have any regrets later. Imagine going for a test in another six months and having something show up. You would think, "Geez, I should have had a scan instead of the ultrasound." We all know how important it is to catch it early. Think of how good you'll feel once you have the scan results!

As for your friend, I'm sure accompanying her to these appointments must bring out all those old feelings of terror that tend to die down over time. She
is lucky to have your support. It's interesting that you both have the same oncologist but yet different cancers. I'm guessing that is due to living in a small, rural area?

That thrill you get once testing is done will return. Your friend will be okay. Many women live for years with breast cancer. She will adjust just like you did. It will be easier for her as she has your support and first hand knowledge. Having said that, I HATE CANCER TOO.

Chels

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