Apr 12, 2013 - 11:43 pm
Hi all! I am now 3 weeks post surgery left radical nephrectomy, a 4cm clear cell carcinoma, contained, doctor feels they got it all so very grateful for that relief. Prior to this unexpected finding of kidney cancer, I had been on about an 8 yr quest from doctor to doctor to figure out my chronic pain, post exertion malaise, fatigue syndrome. Not much luck, they have had me on Humira for 2 years and tramadol for pain. Has been so discouraging, and I actually felt some relief that with an actual diagnosis, this may have been the explanation for my pain and chronic fatigue. So here I am now, telling myself I should be feeling better by now, 3 weeks after surgery so should be able to stop Percocet, trying to be more active to regain strength....not so much! Now I am in a big flare, all the prior pain is returning after the short reprieve on Percocet. I have horrible night sweats and my hip/femur bones are so painful to touch all the time (even on pain med). So reaching out to see if others have dealt with both together? Also, how long after surgery were others able to stop pain meds and actually feel well? Another struggle is my husband also expects I should be "cured" and brand new after surgery recovery. Told him tonight my pain is bad and his response was "my legs and back hurt too". So looking to others who have been in my shoes that might have some good information for me. Always harder to stay upbeat when you are hurting....thanks for any takes on this. Hope not many others have had the same situation, but if so thank you for sharing.