Apr 11, 2013 - 12:43 pm
Am six months post hemipelvectomy and pelvic clearance for my recurrence of rectal cancer and so thought I would update progress. I have my first prosthetic following a stay in a specialist unit in London and am finding it less cumbersome and clumsy than I thought. It is still slower than crutches and I still use sticks on it but hope to get down to one stick so can once again carry something as I walk. Am returning to work slowly and am just over half time which is tiring as I am wearing the leg at work (and not really anywhere else due to being more mobile on crutches). Am exercising again in the gym and exploring football played on crutches which looks great. I still have moderate pain in the wound and phantom pain (painful sensations in the leg they removed- wierd and unpleasant but you get used to it in time) as well as some problems with a small section of wound not healing.
I did have my CT and bloods this week which remain clear (CEA 1.3) so remain NED but know it is early days (after last times recurrence at 7 years clear). So life is slowly returing to a new normality with the kids getting used to how things are now and me finding adapted ways to do most of what I have always done. I currently think it was the right decision (was predicted to not last out this year without the op) but only time will tell. In truth I have less pain and am more functional than I was before the op even though only have one leg so really have little to gripe about. I have many here to thank in supporting me in making what was the hardest decision of my life.
One of these days I will post a picture when CSN is working a bit faster (uploading very slowly at present).
Will be popping a cork to celebrate my ned tonight- join me round the world in a toast,