Apr 10, 2013 - 10:29 am
There have been a few different conversations on here about doxil and side effects - most recently the rash which I do have. However my main problem now seems to be with severe stomach cramps. The kind where you curl up in a ball and hold your breath until the pain subsides. Ugh!
I have had four rounds of Doxil. I first had the cramping after the third round. It was so bad over a weekend I nearly called my doctor and went to the emergency room. So we had a sonogram done to make sure I didn't have anything else going on - like gall stones. Gall stones!!??? I don't have time for gall stones! LOL! Anyway I do not have gall stones.
The pain starts about a week after my treatment and can last several days - really bad first day or two then subsides over time. Actual pain which comes and goes and lots of tenderness to the touch or when I move - like roll over in bed. Since I have had it the last two times I am guessing this is going to be pretty much standard opperating procedure for me and Doxil.
I have read one of the more rare side effects (less than 1%) is internal inflamation and sometimes internal blistering of the colon and bile duct tubing going from the gall bladder (or something like that). Well that sounds pretty much like whats going on. Woo hoo. I can't just have the normal run of the mill side effects like hand and feet blistering and mouth sores. Oh no I have to have some bizarre exotic reaction!
After the third treatment because of this and the skin rash was so bad we discussed decreasing the dose - but I opted for at least one more at full strength. If it keeps working and things don't get too much worse I figure I will put up with it for a while before switching to something else.
Anyone else experience this with doxil?