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Apr 17 open partial nephrectomy

K80419
Posts: 4
Joined: Apr 2013

Hello!  A week ago Friday I got the call from my PDr that the mass in the CT scan was confirmed by the mri.  I have a mass that needs to come and have been told there is a 90% chance this is cancerous due to the rate of growth.

I was shocked!  I am have surgery on April 17, 2013 step days before my 40th birthday!  WTF!  I have been healthy my whole life!  Why me!  

Some of posts are making me worried!  I am not sure I am completely ready for this.  I people staying with me for 2.5 weeks but do I need to go buy or rent a recliner?  What else am I going to need????

Any advise?  

Kate

icemantoo's picture
icemantoo
Posts: 1625
Joined: Jan 2010

Kate,

Ready or not your initiation to our club is on the horizon. Consider yourself lucky to have a tumor small enough that they are considering a partial The alternative to not joining our club is much less fun.

The first few days after surgery are not fun at all. A few weeks on the couch (you do not need a new recliner) and you will be walking around before you know it. The hard part is getting up to go for necessities those first few days.

The pain medication makes you constipated. Take a laxative. No person in their right mind wants to be constipated a week after Kidney Cancer surgery.

Do not worry about the big C word on the pathology report. It is the exception rather than the rule that it is not Cancer. Hopefully the surgery will be the total and final cure.

For a few months you can show off that pretty buldge on your tummy.

 

Mine was over 10  years ago and I am doing fine.

 

Icemantoo

K80419
Posts: 4
Joined: Apr 2013

Thanks for the kind words!

Kate

adman's picture
adman
Posts: 268
Joined: Jul 2012

...you've found an informative & safe place to vent, learn, and cry. I'm very sorry you have to face this. I felt the same way you do, but at 49.
I had a full Neph - 5.0 cm tumor grade 1, stage 1 & was out of the hospital in 48 hours. Life does go on.

I'll let the 'experts' weigh in on your case. I'm sure they'll ask you for some specifics on your tumor size, etc if you have more info.

On the things I can add value to....
- I found a recliner to be perfect. For several weeks laying down just didn't work for me.
- toilet seat extension that goes on top so you don't have to go so low
- move every day as much as you can. You will get tired, but push yourself as much as you can.
- eat as light as possible - you will be bloated & swollen for a few weeks
- get a 2nd & 3rd opinion if possible
- educate yourself & ask questions
- if your DR doesn't have a great 'bedside manner' & answer your questions without rushing you, find another one
- pray & make peace with this

-M

foxhd's picture
foxhd
Posts: 2025
Joined: Oct 2011

Kate you are not saying that someone else should get the diagnosis and it shouldn't be you are you?  We don't work that way. It stinks for anyone to be here. We don't wish it on anyone. Not even our enemies. Take your momentary self pity and turn that energy into proactive living. Attack this disease. Negative energy is forever lost. This is the survivors network. We try to emphasize surviving. You can redirect youself. There is plenty of encouragement here. Get on our train. We help carry quite a load. We do this together. Sorry you are here. You need to play the cards you've been dealt. Good luck to you.

K80419
Posts: 4
Joined: Apr 2013

Thanks! I got 3 opinions including one from Mayo Clinic. I do not own a recliner should I rent one for a month?
Thanks for the toilet advice. I get one tomorrow.

Kate

Djinnie's picture
Djinnie
Posts: 866
Joined: Apr 2013

Hi Kate,

I am sorry to hear your news, of course it is a shock to your system. Cancer does not discriminate it does not care if you are young or old, if you have been healthy or sick all of your life. The question is not why you, but why any of us, sadly we are all vunerable, it happens.

This is the second time around for me with kidney cancer, the first time was ten years ago, believe me I was no more ready for it this time than I was last time. Who in their right mind could be ready for this sort of news.

The point is there is nowhere to run, we have to face it. The best thing you can do is get as many friends and family around you to support you. Read the posts on here  which can only help to inspire you and help to prepare you.

What type of surgery are you having?

On this this site are many different types of experience but they are all individual experiences, no two are exactly the same. Do not let other peoples experience frighten you, just determine that you can confront this and win.

You will cope better with this news after the initial shock, and you don't have to wait too long for your op that is a good thing.

All the best

Djinnie

K80419
Posts: 4
Joined: Apr 2013

I am have an open partial nephrectomy. The mass is inside the Kidney and my.liver is on top so they get to go in the old fashion way... But I like my surgeon and I know I am in good hands. I have no family.left so my co workers have set up a calendar of shifts for the first 2 weeks I.am home from the hospital to make sure some one is with me at all times. That was hard for me I am very independent and do not ask for help easily so this has been humbling to say the least. I move here in June so I have known these people less than 9 months. I do have 2 friends coming in for the weekends.
Thanks again for the kind words!

Kate

Djinnie's picture
Djinnie
Posts: 866
Joined: Apr 2013

Hi Kate,

I know how hard it is facing this surgery, and I am sad to hear you have no family around you. However, you obviously have some wonderful friends and co workers who are going to care for you. It is difficult the first few weeks because you really can't risk doing much of anything. It is frustrating having to ask for someone's help all the time, but you can't take the risk of causing injury to yourself.

It is not too long until your surgery, and how fortunate that they can save your kidney. I wish you all the best, keep in touch.

 

Djinnie x

foxhd's picture
foxhd
Posts: 2025
Joined: Oct 2011

Kate, I guess you will find out who your friends really are. It's tough. You'll be OK.

AprilandChuck's picture
AprilandChuck
Posts: 101
Joined: Feb 2013

I will tell you what the doctors told my husband..when he asked not why me...because he never really asked the question that way..he asked what did I do to cause this...the doctors reply we don't know...you were just lucky....or unlucky as the case may be...and then  they explained that he came with kidney cancer at a better time to get it..than had he been diagnosed 10 or even 5 years ago..there has been great progress in the treatment of the disease in a realitivly short period of time....and as others have said...a possible partial is better than most who are diagnosed get...it meana your cancer or tumor is still realitivly small..and as most will tell yoou in kidney cancer small is good and your prognosis depending on the type is fairly good...the surgery and recovery are not going to be fun..but it sounds as if you have a good support group...that will make all the difference in healing and recovery...wishing you a great outcome and aspeedy recovery

Augustine
Posts: 2
Joined: Apr 2013

Kate.  I am very sure you will have a safe operation and will recover well. "Why me?", I know how you feel. I felt in that way before; esp no symptoms, signs nor any of the likely attributes for such growth matches with my condition. It took me a long while to accept it.  It was just bad luck. Much like you, I asked a lot of questions to satisfy ourselves and to prepare for the surgery. I bet thousands of questions swirling in your mind now and you wish they are all answered or explained. The following points did well for my operation and recovery

  •   Recliner bed,  as you mentioned, I did consider it. But not necessary. You should practice yourself (now) using your limbs how to get in and out of your bed easily.  Normal lounge seats ok.
  • On returning home, I walked around freely albeit slow.  I attribute this to my speedy recovery whilst in hospital. Key to it is whilst in hospital have some deep good sleep. (Ensure bed there is comfortable or at least a good pillow will help greatly.)
  • Always great to have someone you know visit you whilst in hospital.
  • Must try to get out of your bed soonest possible and do some walking. If you are not, you must try exercising your limbs to keep the blood flow moving.
  • Have faith in your surgeon. That is important. Any concerns pass them over to the one above and He will look after you. In all operations, we hope avoiding complications.
  • Follow your surgeon's instruction e.g. no garlic days before surgery, etc.

Good luck, Kate. Have faith in yourself.  You will be perfectly ok. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

roaddr23's picture
roaddr23
Posts: 77
Joined: Jan 2013

Hope all went well and you are resting and working towards getting better...It is painful in the beginning but it does get better and if you can walk some each day it will help you recover faster....just don't over do it like us independent woman try to do..

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