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anyone have...?

LaCh
Posts: 509
Joined: Dec 2012

anyone ever have

1) elevated liver enzymes post treatment?

2) general, diffuse gastric/intestinal discomfort?

3) internal anal discomfort that came after the post-treatment pain had subsided?

4) diarrhea after having 9 weeks of normal bowels immediately post treatment?

1linde's picture
1linde
Posts: 10
Joined: Apr 2013

 

1linde's picture
1linde
Posts: 10
Joined: Apr 2013

18 months out and think I will always have gastro type issues.  The one thing that really opened my eyes is joining weight watchers. I always had a severe reaction to eating fiber post treatment and thought I was doomed to a white bread unhealthy diet. Everytime I ate high fiber foods - even a fiber muffin - I would have problems with immediate bowel movement which is manageable in private but not in real life.  I had that problem with my first day of weight watchers but instead of quitting fiber food after one attempt went to day two. After the second day no such violent reaction.

 

I still have multiple bowel movements in the morning and give myself two to three hours before leaving for work and even changed my work to begin at 11am and work into the evening to not stress myself out.  It seems that things get better for a while and then there are issues. I have to use cottonelle and the like as it is always an ordeal to me to go to the bathroom and deal with cleanup. I NEVER had those issues in my life but don't want to stay perpetually on anti diarrehal meds as I was using to help with symptoms.

 

Make sure to discuss all concerns with your doctors. I think even with focused radiation our intestines take a beating during treatment.

1linde's picture
1linde
Posts: 10
Joined: Apr 2013

 

 

1linde's picture
1linde
Posts: 10
Joined: Apr 2013

 

LaCh
Posts: 509
Joined: Dec 2012

thanks linde1. yes, things get better fast and then they seem to get a little worse.  Reasurrances to the contrary, I think that you're right, focused radiation is a relative term and I'm guessing that we all had full body radiation. If not, why the thick lead double doors that swing shut during treatment?  To protect.....me?  Don't know what's causing my current problems but I sure hope that this passes.  Because it's a beautiful day outside, my dog is begging me to go out and I want to as badly as he does, but... I just don't feel well. 

Phoebesnow
Posts: 447
Joined: Apr 2011

Yes to 2 3 4 then and now.  Lean more towards constipation now.  I had really bad gas for several months after tx.  Used gasx and think that was a mistake, better to go natural.  Got better around July 7  2011 7 months post tx, ate all vegetables fruits going perfect all way up until nov2012 now hard stools, blockages, unable to east anything but chicken fish and baked potato.  Tons of blood everybtime Totally fed up.

LaCh
Posts: 509
Joined: Dec 2012

Sorry to hear it. Thanks for the information.

jcruz
Posts: 206
Joined: Jan 2013

2 and 3 yes occasionally, less so as time goes on.

I don't know about 1.

4. Still dealing with tricky digestion.  Sticking mainly to low-fiber foods but have introduced a few new well-cooked vegetables and a tasty wheat (but not too grainy) bread with success.  And out of fear of accidents I usually take an imodium tab before I go to work, depending on how the morning at home BMs have been.  I'll be so glad if I can get past this phase.

lizdeli's picture
lizdeli
Posts: 520
Joined: Jul 2009

It took me several months for my digestive system to learn to tolerate certain foods.  I slowly learned what I could eat again and began to add things back into my diet.  I had wierd pains in my stomach area, felt like hernias.  I was convinced that something was terribly wrong, but the doctors assured me it was just my body healing.  The bowel movements gradually got better but it took a whle and I remained cautious for a few months.

After all of that passed, I developed pains in my upper thighs and hips.  That lasted for a few months.  But that went away also.  I would say that lasted about 6 months.

I'm 3 1/2 years post treatment and for the most part I feel good.  The healing process takes time.  Your body has been through more than you realize!

Wishing you well,

Liz

LaCh
Posts: 509
Joined: Dec 2012

Thanks Lizdeli. I suppose the thing that I didn't expect was this sort of retrograde slide. I was feeling better a few weeks ago, eating pretty much what I wanted and now... well, there's nothing I can eat, really. I gained 5 of the 10 pounds I lost during treatments, now have lost 4 of those 5... But I'll just wait and give it time to unfold as it will. Frustration won't change anything so I'll just let it go. It's better for my head, anyway.

Marynb
Posts: 1134
Joined: Aug 2012

Yes to all of your questions, but don't forget that I also have another cancer that started in GI tract. As far as the liver, you will have to have that checked out asap. They can at least do a full liver board and ultrasound to start with.

As far as your digestion, I must say I was amazed at your diet, as you described it. After treatment, I am stil unable to eat many vegetables. I must cook all vegetables. When I don't stick to my new normal diet, I really suffer greatly. I can not digest any fats at all anymore. The pain is not worth it. I have had to increase protein. This may help with your hair loss too.

Recovery is not a straight progression. You will have good days and bad. Good weeks and bad.

It was warm here today and I hope you get out to Central Park with your dog very soon! Hang in there, my friend!

LaCh
Posts: 509
Joined: Dec 2012

Hey Marynb,

Well, the liver thing isn't something that's going to be worked up right away because it may be related to the chemo; I'll repeat the bloods in a month.  The digestion thing isn't related to the kinds of foods that I eat, or was eating, because I can't eat anything right now, that is, there's not one food that triggers the problems, but all foods do. Just...food.  Putting anything in there. It almost seems like my entire GI tract has suffered an injury 9 weeks after the end of treatment, from top to bottom, from stomach to butt (which, btw, is again starting to hurt....anal pain?  What? I thought that was over.)  As for the weather...yeah, yesterday was beautiful. For a reason that defies logic, walking 15 minutes to Central Park seems like too much for me right now, and yet I walked for over an hour along the East River with my dog. It isn't logical.  It's just what I did.  Soon, we'll go soon. Thanks for the words of encouragement. Hang in.

Marynb
Posts: 1134
Joined: Aug 2012

I still have flare ups , depending on what I eat. Martha posted a low fiber diet, which I have had to follow from time to time. Low fat Greek yogurt seems to calm things down for me. Also, hummus when stools get too frequent or watery. When thingsmcalm down for you, you might want to ask the GI doctor to test you for common food allergies. I was stunned at the level of inflammation and the very strong allergies I had to wheat and eggs. Whether or not these allergies existed prior to treatment, who knows. I am glad that I have the knowledge now. It has made a big difference. Hope yu feel better soon.

LaCh
Posts: 509
Joined: Dec 2012

thanks marynb...

Marynb
Posts: 1134
Joined: Aug 2012

Yes to all of your questions, but don't forget that I also have another cancer that started in GI tract. As far as the liver, you will have to have that checked out asap. They can at least do a full liver board and ultrasound to start with.

As far as your digestion, I must say I was amazed at your diet, as you described it. After treatment, I am stil unable to eat many vegetables. I must cook all vegetables. When I don't stick to my new normal diet, I really suffer greatly. I can not digest any fats at all anymore. The pain is not worth it. I have had to increase protein. This may help with your hair loss too.

Recovery is not a straight progression. You will have good days and bad. Good weeks and bad.

It was warm here today and I hope you get out to Central Park with your dog very soon! Hang in there, my friend!

LaCh
Posts: 509
Joined: Dec 2012

thanks jcruz... I was doing better a week or so ago and now my entire GI tract from mouth to 'southern terminus' is in a turmoil.  Anyway, I'll just give it time; I'm in touch with my gastroenterologist so I'm not going it alone. I've just ordered some kefir grains with the intention of fermenting my own kefir for the probiotics in a way that won't break the bank. My personal belief is that tight beam radiation is a relative term and that in all probability we've all been full body irradiated, otherwise the heavy lead doors that close during treatment wouldn't be necessary for anyone outside them. So with that as my operating theory, I'm thinking that the flora in my gut was obliterated. We'll see if the kefir helps (although I've been eating it store bought for a while).  Anyhow, thanks for your input. 

7243
Posts: 211
Joined: Feb 2011

LaCha...yes to 3.  What does ur MD say about all of this?  Are u taking Tylenol For pain?  Are you feeling better at all?  Sending well wishes.

LaCh
Posts: 509
Joined: Dec 2012

Now that's really interesting (as in reasurring) since it's the one symptom that I can't understand. I'm not taking anything for the pain because it's quite tolerable, just something that raised a warning flag for me at this point.  Someone just told me that there's a stomach bug going around.  Maybe that's all that this is. That'd actually be great.  In light of the cancer and the treatments, the first thing that I think of to explain what's happening is that it must have to do with those things but maybe it doesn't.  That'd be the best case scenario. Maybe I just have a stomach bug! 

7243
Posts: 211
Joined: Feb 2011

To finally stop thinking all my aches and pains weren't cancer coming back.  It's such a traumatic experience to get this diagnosis, have treatment, and then to heal And be "normal" again .   It really took 18 months or more to realize a headache was just a headache and not a tumor, or that nausea was just a GI bug, that the pain in my gut was just a bad meal not something awful!!!  I'll bet this is "just a bug" ... But it takes time to trust that's all it is!   Hang in there my dear friend .... I'm with you.  

LaCh
Posts: 509
Joined: Dec 2012

Thanks 7243....actually, I don't worry about the cancer coming back and don't worry that it isn't gone. I just want to make sure that I address a problem if it arises and more than anything else, I just want to feel better. I guess I just have a different take on things than most other people and more than that I'd rather not say. I've gotten myself in hot water on this site more than once and I'd rather not go there again.

Barb5454's picture
Barb5454
Posts: 61
Joined: Feb 2013

I'm going through this right now. I think every pain in my butt or every time I get the sniffles I'm afraid of the cancer is back or the treatments didn't work. I just posted something regarding this. It is awful what we have all been through. The psychological effects are maddening.

 

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