Apr 09, 2013 - 10:04 am
My late wife was advised by her local doctor about becoming chemobrained during her non smokers lung cancer which metatisized to her brain. She was told she would become very forgetful. At the same time, she was required to take various prescription drugs at required schedules. Among those were steroids to control the growth of cancer. I caught her on 2 occasions taking the wrong medicine at the wrong times, a clear symptom of "Chemobrain". She quickly became pyschotic and had to be hospitalized for steroid psychosis. After withdrawning her from steroids, her mental health recovered but at the expense of allowing the cancer to rapidly spread. I was never advised by the doctor to assist her during this chemobrain period in which I would have taken control of her medicine administration which would would have kept her on schedule with the right medicine at the right time. Is this standard to not include the family, spouse or caregiver in assisting the patient with chemobrain? We were advised not to let my wife drive but never a word to the family about being chemobrained. I find this very disturbing that this is not a standardized practice, especially since steroids were involved and known to make patients psychotic. My wife and I were set to go to Duke before this incident ended her life. The consultation with Duke gave us much hope. But we never made it out of the hands of the local doctors and hospitals. I ponder that if including the family was involved in chemotherapy to mitigate the effects of chemobrain, if my wife would still be here with us today. She had all the positive will and support around her but not the much needed advice on dealing with chemobrain.