Apr 08, 2013 - 2:24 pm
when I was first diagnosed, I was told that I had paraneoplastic synrdome,,,
it's supposed to be a situation caused by my own immune system turning against me due to an existance of a neoplasm... I read that it commonly goes away after the origional malignancy is treated/ cured successfully (which is what I was told too),,, but I still have an autoimmune situation not going away,,, has anyone else ever had paraneoplastic syndrome?
I heard that it in itself is quite rare... and it is even more rare in children or adolecents,,, (the cancers that are more commonly associated with this is apparently breast cancer, lung cancer and neuroblastoma) and the type that I had was SPS which is supposed to be more common in breast cancer patients,,, not my form of cancer...
I'll appreciate any info or stories... of any type of paraneoplastic syndrome and associated to any form of cancer,,, cause I, so far, know nobody else that had this,,, other than the old man I saw once who had CLL and skin-associated paraneoplastic syndrome...but he was sent to the ICU and we haven't met since,,, (and this was quite some time ago,,,)