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I am terrified!!!

Mandy0414
Posts: 6
Joined: Apr 2013

Hi, I know I probably shouldn't be on here because I haven't been diagnosed with cancer yet!! This nightmare all started 2 weeks ago as I am so so so scared!!! I thought I had a uti and was put on 3 different types of antibiotics.. Te symptoms are gone now but there is still microscopic blood and a trace amount of protein in my outline. I am so scared that this could be bladder cancer, kidney cancer or soMe terriable kidney disease. I have a 7 yr old son and I am a single mom... So scared. I can't eat or sleep. And all I want to do is cry. 

 

Any advice???? An thank u all for listening to me vent..

keimic
Posts: 2
Joined: Feb 2008

Mandy I feel for you.  I found out that I had kidney cancer 6 1/2 years ago when I went to the doctor with unusual abdominal pain.  He ordered a CAT Scan which revaaled a large growth on my left kidney.  By the way that growth was not what was causing the pain.  I have learned that it is not uncommon for people to discover that they have kdney cancer when they get a CAT Scan for some unrelated problem - like an auto accident.  I never had blood in my urine.  Two weeks later I had a total nephrectomy of my left kidney.  Now 6 1/2 years later, I am about to go in for a partial (hopefully) nephrectomy of my right kidney because I have had a recurrence - which is unusual in the great scheme of things.

I am telling you all this to emphasize the fact that I had no way of knowing that I had cancer, or a recurrence of cancer, without the use of imaging diagnostic techniques - CAT Scans, MRIs, and PET Scans.  Kidney cancer is not alway accompanied by unusual urine.  And, unusual urine can be the sign of many problems other than cancer, including some that are quickly treatable.

You haven't said what treatment you have sought.  I recommend that you see your primary care physician and ask her/him for a referral to a urologist.

 

Good luck to you.

icemantoo's picture
icemantoo
Posts: 1554
Joined: Jan 2010

Mindy,

 

There are many things which can cause your symtoms. Find out what is wrong thru the tests the doctor orders  and if it turns out that it is Kidney Cancer we will help you through it. No fun being told you have KidneyCancer or any other Cancer, but there are a lot of worse things out there, Mine was almost 11 years ago and I am doing fine.

 

Icemantoo

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

hi mandy,

i know but this is soooo hard but try not to worry until there is something to worry about.  not easy i know but as icemantoo says there could be many reasons for your symptoms.  wait and see what they say and if you are really struggling there is nothing wrong with asking your doctor for something to help you through this!!  everyone on this site are here for you and sending lots of get well wishes your way.

eims x

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013


Hi Mandy,

I understand that you are frightened, it is very worrying when you are faced with health problems, particularly when you don't know what is causing it. Try not to become consumed with fear, because before you know it you will have a whole doomsday scenario playing out in your head. You will have yourself convinced that this can only end badly and your stress levels with be up through the roof.

There are many, many things that could be causing your problem. My husband recently was passing visible blood protein in his urine. He was treated for an infection but still had blood identified. He had a kidney stone which was causing the problem, he had no pain so it was a surprising find, and easily treated.

I have had oral cancer, cancerous polyps in the bowel and kidney cancer twice, I am currently just recovering from a partial nephrectomy on my kidney. The point is that each one was caught in good time and I recovered? I know it is hard to deal with but please don't let your fears take over. Once you have a diagnosis you will be able to deal with it and whatever is causing the problem you will have a crack team of medical experts to help you. 

Do you have family and friends around you to support you?

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Wise words from an old hand, Djinnie.

What's even more salutary is when someone like you comes along, with the perfect attitude, after having gone through so much that it kicks any self-pity out of the rest of us (or, at any rate, it ought to).

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

wow djinnie, you really are a trooper with a great attitude.  do you mind me asking you did you have kidney cancer in the same kidney twice?  

eims x

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hello Eims,

Unfortunately the answer is yes, same place and the same size as the first one. I had Radiofrequency treatment in Dallas ten years ago. I have since come back to Europe and now live in France. It was rather like déjà vu, went to the doctor with stomach pain, had a range of scans then low and behold there was a tumor. I have been very fortunate each time, thank god for my sensitive stomach. 

Are you in the USA or Europe?

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

hi djinnie, im in ireland....i was sent originally with suspected gall stones but they found the tumor then completely by accident.  i suppose its like most other people here!!  pure chance really.

eims x

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hi Eims,

I wondered if you were in Europe, a lot of your terminology indicated it. I hope I have not added to your concerns with my response about the second bout of cancer. I wanted to assure you that I have been advised that if I had undergone a nephrectomy the first time instead of Radiofrequency I probably would not be in this position. The tumor was probably too big for the first treatment to be successful.

All the best

 

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

i was originally having a partial nephrecomy djinnie but when they got in there the roots of the tumour were too far into the kidney itself so they decided to take the whole lot...as my consultant said he wasn't prepared to take the chance!!

eims x

TerriNick
Posts: 43
Joined: Mar 2013

Hang on in there Mandy. It could mean anything and most of what it could mean are not cancer. But everyone on this site can appreciate how scared you are feeling. If you are that scared can you ask your doctor for a CT or MRI scan? It was the CT scan that showed Nick's kidney cancer after going through 3 lots of antibiotics for what they thought was a chest infection and fluid in the lung. Luckily because of that they found the cancer quite early on and are treating him now. But just because that is what happened to him it does not mean that it will be cancer for you. But if you can get a CT or MRI done then at least you will know for definite what you are dealing with and you can then get it treated.

 

Good luck Mandy.

 

 

Patrick72
Posts: 14
Joined: Feb 2013

Mandy, being scared of the diagnosis happens. My advice would be to talk to your doctor, hug your son, talk to counselor or priest, and see where you can find some peace. Has your doctor ordered any tests?  Waiting for results stinks but it is better than not knowing.

 

Hang in there. It gets easier to deal with as time passes. Reading the forums here helps to understand that if it is cancer it is beatable, and you can go on to recover and have a full and healthy life.  Oh, and no one is going to try to kick you off of here because you haven't had an official diagnosis yet. It would be better if you didn't have to look for this place because you had this concern but since you are here you are more than welcome. We will just all hope that it isn't cancer or some other terrible kidney disease that you have. If it isn't we will all cheer you on and be incredibly happy for you. If it is, well, we will be here to listen and support you how we can.

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