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told me two years to live

muffingranma
Posts: 107
Joined: Sep 2012

I haven't been in for a while trying to sort things out. I had posted about having about four surgery's after August 2012 till November the fifth 2013. After taking the drains out at the end of Nov. I was drained about every week until I started my radiation treatments. I had my mastectomy the fifth of Nov. 2012 then February the fifteenth I had another surgery where the cancer came back in the incision. He said he could do no more surgery because my skin was pulled so tight that he would have to use my stomach muscles to build a chest wall and skin from my back or leg to graft skin over that. He said it was a horrible surgery and with all my medical problems he didn't want to do it. There would be nothing else they could do. It's Angiosarcoma cancer it's a rare cancer caused by the radiation I took for my cancer five years ago. I  am so worried about my family having a place to live  Both my sons have been laid off, the one for about three months and can't find a job. I pay the rent they pay everything else. I can't get loans or them either. I just worry about there future. I am taking radiation which gave me this cancer it scares me, but the only chance I have to prolong it from coming back soon. I have had no reconstructive surgery. I am burnt so bad  and raw from the skin coming off from the radiation and still have the three weeks to go every day. Sorry for unloading on everyone. I thought some may remember me. I still have the real bloody fluid when it is drained

New Flower
Posts: 3989
Joined: Aug 2009

My thoughts are with you and your family. Please ask your radiologist for prescription ccreams hugs 

muffingranma
Posts: 107
Joined: Sep 2012

My radiologist gave me a prescription for Silver Sulfadiazine cream. I used it for the first time last night. My skin is so burnt it is peeling off, and then it is very  raw. I  have the two more weeks to go, I may have to do scans after that, then off to my lung doctor and getting cataracts taking off . He can only do one eye. I had a stroke behind one eye ,so he won't mess with it. Getting the cataracts off one eye will help me see some. I have got to see my lung doctor also. I just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok

Josie21
Posts: 338
Joined: Nov 2012

Hi Muffingranma,

To say I am sorry does not seem to be enough.  It's bad enough to be fighting this horrible disease, but to carry the burden of your family's financial future must be hard to bare.  I hope that you can focus on taking care of your health at this time.  No one knows how long we have on this earth.  Your son's might get jobs tomorrow and then you spent valuable energy worrying about something that took care of itself.  I truly hope that happens for you and your family.

You and your sons will be in my prayers.  If anyone needs a hug it is you, so I am sending you many, many virtual ones.

Ginny

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

I wish I could just wrap my arms around you and tell you everything will be ok.  I don't even have the words to express how sorry I am and how I wish I could just wave a magic wand and make your cancer go away and your sons get really good jobs, so, you didn't have to worry about finances too. 

No one has an expiration date on them..no one!  I know it must be difficult to have rads again, when that is the cause of the cancer.  You shouldn't have to suffer with them though.  There are so many creams your rads onco can prescribe for you to help, or, even stop the rads for awhile to let your skin heal.  No rads onco should ever let a patient burn bad.  Please speak up and ask for help..please.

I am glad that you updated us, but, so very sorry for everything going on with you.  I will be praying for you and your family.  I know that we pinkies all will.  Keep us updated.

 

Sue

 

kmenurse's picture
kmenurse
Posts: 223
Joined: Apr 2013

It seems to me that the words I'm Sorry! is not enough... I don't know what your religious back ground is but, I will pray for you and your family... I wish you all that God can offer you... Kathy

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Praying for you!

Lots of cyber hugs,

Lex

muffingranma
Posts: 107
Joined: Sep 2012

My radiologist gave me a prescription for Silver Sulfadiazine cream. I used it for the first time last night. My skin is so burnt it is peeling off, and then it is very  raw.  It hurts in my left chest area and under my arm. He said if it was fluid build up I  couldn't have it drained now., not till after radiation. I may have to do scans I  have  two more weeks to go, I may have to do scans after that, then off to my lung doctor and getting cataracts taking off . He can only do one eye. I had a stroke behind one eye ,so he won't mess with it. Getting the cataracts off one eye will help me see some. My grandson comes in my room to say hello and that he loves me. I want to take him out to eat or do something with him. I told him soon as I get a little strength we would do something together  We have him on weekends, he has been a good boy. I hate when I  feel so weak that I can only lay in my bed. I  just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok. I wish I would hit the lottery I would buy a house and a food truck lol dreaming again. We probably all would like that. My sons would have their business.  My sons had to help out with there dad who also had cancer and a bad heart . He died suddenly with a main stem stroke.  He had no insurance nor do . I we couldn't get insurance because of medical issues I pray for everyone battling cancer that they win, Thank you for caring. Thank you for the hug. .

survivorbc09
Posts: 4378
Joined: Jun 2009

May God watch over you and help you through this rough time.  We all do care and we are all praying for you.

Many hugs and prayers,

Jan

muffingranma
Posts: 107
Joined: Sep 2012

My radiologist gave me a prescription for Silver Sulfadiazine cream. I used it for the first time last night. My skin is so burnt it is peeling off, and then it is very  raw.  It hurts in my left chest area and under my arm. He said if it was fluid build up I  couldn't have it drained now., not till after radiation. I may have to do scans I  have  two more weeks to go, I may have to do scans after that, then off to my lung doctor and getting cataracts taking off . He can only do one eye. I had a stroke behind one eye ,so he won't mess with it. Getting the cataracts off one eye will help me see some. My grandson comes in my room to say hello and that he loves me. I want to take him out to eat or do something with him. I told him soon as I get a little strength we would do something together  We have him on weekends, he has been a good boy. I hate when I  feel so weak that I can only lay in my bed. I  just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok. I wish I would hit the lottery I would buy a house and a food truck lol dreaming again. We probably all would like that. My sons would have their business.  My sons had to help out with there dad who also had cancer and a bad heart . He died suddenly with a main stem stroke.  He had no insurance nor do . I we couldn't get insurance because of medical issues I pray for everyone battling cancer that they win, Thank you for caring. Thank you for the hug. .

muffingranma
Posts: 107
Joined: Sep 2012

My radiologist gave me a prescription for Silver Sulfadiazine cream. I used it for the first time last night. My skin is so burnt it is peeling off, and then it is very  raw. I  have  two more weeks to go, I may have to do scans after that, then off to my lung doctor and getting cataracts taking off . He can only do one eye. I had a stroke behind one eye ,so he won't mess with it. Getting the cataracts off one eye will help me see some. My grandson comes in my room to say hello and that he loves me. I want to take him out to eat or do something with him.  We have him on weekends, he has been a good boy. I hate when I  feel so weak that I can only lay in my bed. I  just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok. I wish I would hit the lottery I would buy a house and a food truck lol dreaming again. We probably all would like that. My sons would have their business.  I pray for everyone battling cancer that they win, Thank you for caring. Thank you for the hug. Here's a hug for you

muffingranma
Posts: 107
Joined: Sep 2012

My radiologist gave me a prescription for Silver Sulfadiazine cream. I used it for the first time last night. My skin is so burnt it is peeling off, and then it is very  raw. I  have  two more weeks to go, I may have to do scans after that, then off to my lung doctor and getting cataracts taking off . He can only do one eye. I had a stroke behind one eye ,so he won't mess with it. Getting the cataracts off one eye will help me see some. My grandson comes in my room to say hello and that he loves me. I want to take him out to eat or do something with him.  We have him on weekends, he has been a good boy. I hate when I  feel so weak that I can only lay in my bed. I  just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok. I wish I would hit the lottery I would buy a house and a food truck lol dreaming again. We probably all would like that. My sons would have their business.  I pray for everyone battling cancer that they win, Thank you for caring. Thank you for the hug. Here's a hug for you

muffingranma
Posts: 107
Joined: Sep 2012

My radiologist gave me a prescription for Silver Sulfadiazine cream. I used it for the first time last night. My skin is so burnt it is peeling off, and then it is very  raw. I  have  two more weeks to go, I may have to do scans after that, then off to my lung doctor and getting cataracts taking off . He can only do one eye. I had a stroke behind one eye ,so he won't mess with it. Getting the cataracts off one eye will help me see some. My grandson comes in my room to say hello and that he loves me. I want to take him out to eat or do something with him.  We have him on weekends, he has been a good boy. I hate when I  feel so weak that I can only lay in my bed. I  just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok. I wish I would hit the lottery I would buy a house and a food truck lol dreaming again. We probably all would like that. My sons would have their business.  I pray for everyone battling cancer that they win, Thank you for caring. Thank you for the hug. Here's a hug for you

Lynn Smith
Posts: 1265
Joined: Mar 2011

I feel the same way as Ritzy.As soon as I saw the post I wondered how can doctors tell us how long we have to live.Many people survive  years later after being told they have months to live.It's speculation. No one every knows how long.Not even doctors.

I know how you feel about your sons.I have 3 and 2 are married.One lives with us parttime and also his girlfriend.I worry about all three making it later in life.We started years ago putting money back for retirement.I think we're set but still a worry.I tell my sons to start putting in for retirement.Even if's it's $100 a month and then increase it later.We haven't missed what My husband has saved and I had a inheritance from my aunt. We've left it where it is but when my husband retires we have to dip into it. 

I wish so much for you to get better.I believe you will.I know how we feel about ourselves.Always think the worse.And you have doctors telling you things which also doesn't help.

My friend was Stage 3 and had a lumpectomy.I worried about her makiing it having a lumpectomy but she has for over 18 years, I took her to some of her radiation treatments and she was so burnt.I remember her complaining about it and how bad it was but like she said "The Radiaton is Killing My Cancer". it will kill yours too!!!! 

Thoughts and prayers to you and your sons.I hope more than anything they find a job soon. 

Lynn Smith

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I think you really need to talk to your rads oncologist and stop rads for a few days or weeks.  I know people that have had to do this as their skin was burning too bad. 

Take care of yourself and focus on living! 

Wishing your sons good luck also.

Hugs, Angie

muffingranma
Posts: 107
Joined: Sep 2012

My radiologist gave me a prescription for Silver Sulfadiazine cream  My grandson comes in my room to say hello and that he loves me. I want to take him out to eat or do something with him. I told him soon as I get a little strength we would do something together  We have him on weekends, he has been a good boy. I hate when I  feel so weak that I can only lay in my bed. I  just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news.  I knew this kind of cancer caused by the radiation I took for my cancer five years that gave me this cancer had nothing that could work against it  But it was still hard to hear. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok. I wish I would hit the lottery I would buy a house and a food truck lol dreaming again. We probably all would like that. My sons would have their business.  My sons had to help out with there dad who also had cancer and a bad heart . He died suddenly with a main stem stroke.  He had no insurance nor do . I we couldn't get insurance because of medical issues I pray for everyone battling cancer that they win, Thank you for caring. Thank you.

muffingranma
Posts: 107
Joined: Sep 2012

 My skin is so burnt it is peeling off, and then it is very  raw. I  have  two more weeks to go, I may have to do scans after that, then off to my lung doctor and getting cataracts taking off . He can only do one eye. I had a stroke behind one eye ,so he won't mess with it. Getting the cataracts off one eye will help me see some. My grandson comes in my room to say hello and that he loves me. I want to take him out to eat or do something with him. I told him soon as I get a little strength we would do something together  We have him on weekends, he has been a good boy. I hate when I  feel so weak that I can only lay in my bed. I  just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok. I wish I would hit the lottery I would buy a house and a food truck lol dreaming again. We probably all would like that. My sons would have their business.  My sons had to help out with there dad who also had cancer and a bad heart . He died suddenly with a main stem stroke.  He had no insurance nor do . I we couldn't get insurance because of medical issues I pray for everyone battling cancer that they win, Thank you for caring.

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Lynn, you are so right!  Not even doctors can tell any of us how long we have to live!  Many on here were given a time limit, and guess what, they are enjoying life to the fullest still, years later.   

You just focus on getting through rads and living your life too! 

Sue :)

ladyg's picture
ladyg
Posts: 1577
Joined: Apr 2010

I feel so bad for you and what you are going through. Do not dwell on the 2 year thing because they really don't know. What you need to do right now is concentrate on taking care of yourself. You should definitely talk to you rad onco about stopping for at least a few days. You need some time to heal before you get any worse. I sure hope they have told you about using creams to help. Aquaphor is a good one. I will keep you in my thoughts and send you some positive healing energy.

Hugs,

Georgia

muffingranma
Posts: 107
Joined: Sep 2012

 

My radiologist gave me a prescription for Silver Sulfadiazine cream. I used it for the first time last night. My skin is so burnt it is peeling off, and then it is very  raw. I  have  two more weeks to go, I may have to do scans after that, then off to my lung doctor and getting cataracts taking off . He can only do one eye. I had a stroke behind one eye ,so he won't mess with it. Getting the cataracts off one eye will help me see some. My grandson comes in my room to say hello and that he loves me. I want to take him out to eat or do something with him. I told him soon as I get a little strength we would do something together  We have him on weekends, he has been a good boy. I hate when I  feel so weak that I can only lay in my bed. I  just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok. I wish I would hit the lottery I would buy a house and a food truck lol dreaming again. We probably all would like that. My sons would have their business.  My sons had to help out with there dad who also had cancer and a bad heart . He died suddenly with a main stem stroke.  He had no insurance nor do . I we couldn't get insurance because of medical issues I pray for everyone battling cancer that they win, Thank you for caring. Thank you
Pink Rose
Posts: 495
Joined: Nov 2012

I don't know how your rad oncologist and techs could let your skin get like you say it is.  That is just not right.  This is my opinion, but, I can't believe anyone in the oncology field would not have some compassion and concern if one of their patients skin was peeling off and raw.  Your rads, in my opinion, should be stopped, at least until your skin heals up.

This is unbelievable and I am so sorry. 

And like Ritzy said, none of us have an expiration date stamped on us.  We're all terminal, we're all going to die from something someday.  Don't let that 2 years stick in your head.  You could have many more, as, your onco does not know.  Many bc survivors have lived way past what they were told and are still living. 

Lots of gentle hugs,

Rose

muffingranma
Posts: 107
Joined: Sep 2012

My radiation doctor said not to do it for the one day. He said he has to stay on top of it.The cancer is called Angiosarcoma it keeps coming back about every three months. It's radiation cancer from the radiation I took five years ago for the breast cancer then. Since August of 2012 I have had the four surgery's my last was February fifteenth. I can't have anymore surgery in that area. He said he knows it hurts but is trying to blast any cancer left in any blood cells in that area. I hope it works then at least I may have the two year's. I  thank everyone for there prayers and hugs. I pray for all my cancer friends and others with other cancers and illnesses. I look at houses on line and pretend there mine and how I would arrange them, it keeps my mind occupies for a while from things. I hope everyone has a better day. Hugs and prayers for all

Pink Rose
Posts: 495
Joined: Nov 2012

I am glad that your radiation oncologist is stopping the rads for at least one day, but from what you wrote, I would think you'd need longer than one day.  I know I am not a doctor, but, your skin needs some healing.  I hope he delays them longer for you.

I am so sorry about your cancer and I understand that your doctor needs to continually treat you, but, burning someone to the point to where you're raw and your skin is falling off is just not right to me.

I will continue to pray for you and think positive thoughts.

Hugs, Rose

muffingranma
Posts: 107
Joined: Sep 2012

 

My radiologist gave me a prescription for Silver Sulfadiazine cream. I used it for the first time last night. My skin is so burnt it is peeling off, and then it is very  raw. I  have  two more weeks to go, I may have to do scans after that, then off to my lung doctor and getting cataracts taking off . He can only do one eye. I had a stroke behind one eye ,so he won't mess with it. Getting the cataracts off one eye will help me see some. My grandson comes in my room to say hello and that he loves me. I want to take him out to eat or do something with him. I told him soon as I get a little strength we would do something together  We have him on weekends, he has been a good boy. I hate when I  feel so weak that I can only lay in my bed. I  just feel so weak and I hurt in my chest area and under my arm. When I went in his office and he said I only had a few months to a year, maybe two at the most really floored me. I   didn't know what to say after all the surgery's and being drained of fluid all the time. I was hoping for good news. I pray for everyone going through rough times with cancer and other illnesses. Thank you for responding. I hope you and your family are doing ok. I wish I would hit the lottery I would buy a house and a food truck lol dreaming again. We probably all would like that. My sons would have their business.  My sons had to help out with there dad who also had cancer and a bad heart . He died suddenly with a main stem stroke.  He had no insurance nor do . I we couldn't get insurance because of medical issues I pray for everyone battling cancer that they win, Thank you for caring. Thank you
survivorbc09
Posts: 4378
Joined: Jun 2009

Hoping and praying your skin is doing better. 

 

Hugs, Jan

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

How are you doing with rads now?  Did you get more than one day off? 

Lex

Double Whammy's picture
Double Whammy
Posts: 2275
Joined: Jun 2010

between the cream and the time off, I'm hoping you're getting some relief.  Having a cancer that is difficult to "fix" must be very emotionally as well as physically draining.

I understand your worry about your sons.  Hopefully, they will find work and create independent lives soon.  

I hope we can provide support for you.  I'm sending some prayers for you and yours,

Suzanne 

Pink Rose
Posts: 495
Joined: Nov 2012

Positive thoughts and lots of hugs!

dthompson's picture
dthompson
Posts: 149
Joined: Nov 2012

Our thoughts and prayers are with you my dear. I'm so sorry that you are going through this rough time. We are always here for you . God Bless !!

 

Dennis

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

It's hard to even know what to say.  Try to stay positive and focus on living.  You know we all support you.

NOel

ppurdin's picture
ppurdin
Posts: 935
Joined: Jul 2009

Sorry to hear all this.My Prayers are with you.I Pray they are giving you something to put on the burns.

Pink Rose
Posts: 495
Joined: Nov 2012

I thought you might need a hug today.  I will be gentle as I know you're burnt from rads.

Gentle hug, Rose

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