Apr 05, 2013 - 11:36 pm
Wondering if others have/had lymphadema, how troubling is it, and what you do to relieve the symptoms.
I asked about lymphadema before my surgery - total hysterectomy with some lymph nodes removed. The surgeon told me that it does occur, but not frequently.
Before discharge a lymphadema OT came by to talk with us and gave us information. 4 months after the surgery, after the 4th chemotherapy treatment my right leg was swelling and my ached. When I called the nurse to see if I needed to see the oncologist, she said I would be referred to a PT oncologist who specializes in lymphadema, that this was a "common occurrence."
I was evaluated, and today had a first treatment. I was surprised to learn that I have lymphaema in my leg (not too serious), in my abdomen, and genitalia. I had NO idea that it might occur in my abdomen or pubic area. Apparently it relates to urinary leakage, and explains some of my abdominal discomfort. The PT was wonderful. She did lymph massage, and discussed possible treatments and equipment: compression pantyhose or wraps, and if insurance will cover, equipment that will massage my leg, abdomen and genital area - would need to be used an hour daily. I was told to avoid cuts, BP checks, IV, or injections on my legs (which sometimes happens), told to watch sodium intake, and to walk daily. I'll have twice weekly treatments for the next few weeks. Later on we'll work on Urinary Incontinence issues.
While I appreciate the wonderful Physical Therapist, I'm reeling. Yet another "new normal", with treatments that I'll need to do daily from now on, and a list of cautions.
After surgery I was discharged with a prescription for daily lovenox shots for 30 days, to administer in my abdomen to prevent potential bloodclots. Now I find out that this might have caused to abdominal lymphadema.
I've been having acupuncture treatments, but now they recommend that I not have needles inserted below the waist. Oh dear...
Do many of you have lymphadema? What treatments and interventions do you use? Are they helpful? Do you use nutritional or any other interventions?
I appreciate any feedback.