CSN Login
Members Online: 15

You are here

Olaparib & cediranib (PARP trial)

2timothy1 7's picture
2timothy1 7
Posts: 348
Joined: Jan 2012

I'm in the trial at NIH. Starting April 15th. Anyone else doing this trial?

SHANNON1231's picture
SHANNON1231
Posts: 53
Joined: Nov 2012

No have not heard of that one, but best of luck to you!

2timothy1 7's picture
2timothy1 7
Posts: 348
Joined: Jan 2012

Shannon 

thanks for responding. Hope your ascites clears up soon. I have a friend who has had the procedure done twice. She said the only pain was the initial needle inserted for numbing.  Hope you have better luck next time:).

wholfmeister's picture
wholfmeister
Posts: 304
Joined: Dec 2012

I will be eager to hear how it goes!  

MJensen
Posts: 93
Joined: Oct 2012

Hi,

Please let me know how the trial goes.  I asked my Dr about Parp Inhibitors and he said the Drs couldn't get their hands on it here.  I hope it works for you.  It was on the news last night. Very Promising.  Please let me know if there are any side effects associated with it.

Good Luck!    Please keep us posted.  Sending positive energy....Michele

2timothy1 7's picture
2timothy1 7
Posts: 348
Joined: Jan 2012

Been on PARP drug for a week now. So far no nausea! Fly to Maryland next month for bloodwork. Hopefully this is working:).

Alexandra's picture
Alexandra
Posts: 1316
Joined: Jul 2012

I contacted University of Michigan in Ann Arbor about the Cediranib and Olaparib trial. Yesterday I received reply from Dr. R. Buckanovich that "there are currently only 1-2 slots available in the trial before the trial closes so he cannot guarantee the trial will be open in a week as multiple universities are enrolling patients". Unfortunately they don't take my insurance.

So if anyone wants to enroll, hurry up.

2timothy1 7's picture
2timothy1 7
Posts: 348
Joined: Jan 2012

Alexandra 

did you want too do this trial for maintenance ? 

Shawnna

Alexandra's picture
Alexandra
Posts: 1316
Joined: Jul 2012

I thought that by the time I get all insurance paperwork together, I will recur and do PARP instead of chemo. I am pretty sure that it will work for me too, because it was originally tested and proven to be working on BRCA1/2+ patients. 

Outside of this trial the only way I found to buy PARP online is crazy expensive ($340/100mg or $2,720/day). If it comes to that, I am better off participating in the trial that covers the cost of the drug itself and paying out of pocket for a few CT scans / blood tests.

2timothy1 7's picture
2timothy1 7
Posts: 348
Joined: Jan 2012

Ok, I see. I knew they didn't do maintenance . also knew you were NED. That's why I was wondering. Hopefully you will not recurr.

i didn't know it was even sold online. I take 400 mg per day. No nausea , no problems so far. 

Keep researching. If there's a way you will find it.

Shawnna