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Update first IDC now SCC

Patti1967
Posts: 186
Joined: Mar 2013

I saw my new doc at UIC today, I go for a CT scan on Tuesday then I see her again and a rad onco on March 16.  She's hoping to be able to try just radiation treatment due to the fact that surgery can be disfiguring....I will find out on the 16th if it will just be radiation or surgery and radiation.  I really like my new Dr. she wants to try and do everything to kill the cancer and keep my face as normal as possible.  I am not going to get my hopes up about no surgery but at least its a possiblity:)

She took pictures of my chin and lip, she's at the top of her field and has never seen another case like mine.  They are thinking that the IDC and treatment has something to do with it.  She told me that she will research it till she can show me  I am not alone:)

Thanks everyone for all your support, it means so very much to me.  I am hoping to be able to start tamoxifen as well, I don't want IDC to come back because treatment for my breast cancer was put on hold because of this new cancer.  I so hate cancer!

Patti

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Happy to read that you're feeling better.  Not happy that you can't eat or talk.  Are you just sipping liquids through a straw then Patti?  Will that be enough to sustain you?  When do you see the doctor again?

Lots of cyber hugs,

Lex

Patti1967
Posts: 186
Joined: Mar 2013

Yep just a liquid diet, ensure, smoothies etc.  I go back to see my surgeon today and for a PET.  I probably won't get my stitches out for another week.  Thanks Lex:)

Hugs!

Patti

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Good luck today with your appointment with your surgeon and your PET.  Post an update for us Patti.

Prayers and hugs,

Lex

Josie21
Posts: 338
Joined: Nov 2012

Hi Patti,

I haven't been on the site much because I am in NY for my 6 month check-up.  I drove here from Florida last week with my husband and two crazy West Highland Terriers.  OMG, never again!!  I just wanted to see how you were doing.  I hope you continue to feel better each day.  You are in my thoughts and prayers.

Many, many hugs to you,

Ginny

Patti1967
Posts: 186
Joined: Mar 2013

Ugh well not so great news but not awful either, my surgeon informed me today that my margins were not clear on two places on my lip.  One close to surface and one inside my lip.  She will be talking with the rest of my team tonight at the tumor board meeting and is hoping my rad onc thinks he can kill the rest with the 36 radiation treatments I will be having.  As far as my PET, my husband who wrote down the info when I was still loopy from my surgery last week, got the date wrong lol I have the PET next Tuesday, on the 30th.  Nice way to spend my B-day lol but hey at least I am here and celebrating another B-day:)  They are holding off on giving me my complete treatment plan, told me to prepare for chemo again as well due to them being as sure as they can be before my lung biopsy that the noduels are cancer.  I won't have the lung biopsy until after I have the PET.

They seem to think that back in Aug when I was diagnosed with bilateral IDC, with a fully metastic node, that it was already in my lungs all be it microscopicly (sp?) that's why it didn't show on my CT/PET I had right after my bilat mastectomy in Sept.  

So for now I don't have to go back until Monday and at least then I can get these stiches out and EAT lol.   I have been making a list of everything I am going to eat.  On the bright side I have lost 6 pounds this past week and am only now 10 pounds away from my ideal weight!  There always has to be a bright side, right?  Ginny you have to go from FL to NY?  Oh my goodness!  I hope your check up went well and everything is fine:)  Thanks for you thoughts everyone!

Patti 

Double Whammy's picture
Double Whammy
Posts: 2268
Joined: Jun 2010

Hi Patti-

Thank you so much for keeping us updated.  I check ofter to learn about your progress.  You will soon have all the information and a full treatment plan in place.  I'll continue to send lots of good mojo your way.  So sorry you've been hit with so much at once. 

Suzanne

Pink Rose
Posts: 495
Joined: Nov 2012

I am sending lots of prayers to you!

Hugs, Rose

Josie21
Posts: 338
Joined: Nov 2012

Hi Patti,

I am still hoping with all my heart that the lung nodule is not cancer.  I think you have been through quite enough now!! No matter what, you will survive whatever life throws at you.  You are clearly an amazing, positive person who will fight this.  I am sorry you have to deal with so much.  It is just not fair.  I hope you get to eat as much as humanly possible when those stitches come out.  I think you should try and gain those 6 pounds back in one day!! You deserve it.

As for me, I moved to Florida 6 months after being diagnosed, but I loved and trusted my oncologist so much that I travel back and forth every 6 months to see her.  I see her tomorrow.  

Please keep us posted.  You are in my thoughts and prayers.

Hugs,

Ginny

Patti1967
Posts: 186
Joined: Mar 2013

Thanks Suzanne:) Oh I see Ginny, thats quite a drive:)  Let us know how it goes tomorrow, thanks!

Big Hugs to all,

Patti

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

So sorry Patti.  One good thing is it sounds like you have a great team of doctors that are helping you.  Continuing to pray for you and keep posting updates for us.

Huge hugs,

Angie

survivorbc09
Posts: 4378
Joined: Jun 2009

Praying for you and sending lots of hugs too!

Jan

JJDS
Posts: 259
Joined: Apr 2013

Good luck Tuesday with your scan.

 

Pink Rose
Posts: 495
Joined: Nov 2012

Sending you more good luck today Patti. 

Hugs, Rose

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Happy birthday Patti!!!  Not a great way to celebrate your birthday, I agree.  How did today go for you? 

Hugs, Lex

Patti1967
Posts: 186
Joined: Mar 2013

I had the PET earlier, I will get the results tomorrow.  Thanks lex, I actually had an awesome birthday!  

Patti

CypressCynthia's picture
CypressCynthia
Posts: 3932
Joined: Oct 2009

Praying for some happy news!  Your spirit shines through every post.  You are so strong and I admire you sooo much!  Keep fighting dear one!

carkris's picture
carkris
Posts: 4522
Joined: Aug 2009

I have quietly following your posts [raying for good results!

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Happy birthday to you too Patti!  Praying for some good news on your results.

Hugs, Noel

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