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Update first IDC now SCC

Patti1967
Posts: 186
Joined: Mar 2013

I saw my new doc at UIC today, I go for a CT scan on Tuesday then I see her again and a rad onco on March 16.  She's hoping to be able to try just radiation treatment due to the fact that surgery can be disfiguring....I will find out on the 16th if it will just be radiation or surgery and radiation.  I really like my new Dr. she wants to try and do everything to kill the cancer and keep my face as normal as possible.  I am not going to get my hopes up about no surgery but at least its a possiblity:)

She took pictures of my chin and lip, she's at the top of her field and has never seen another case like mine.  They are thinking that the IDC and treatment has something to do with it.  She told me that she will research it till she can show me  I am not alone:)

Thanks everyone for all your support, it means so very much to me.  I am hoping to be able to start tamoxifen as well, I don't want IDC to come back because treatment for my breast cancer was put on hold because of this new cancer.  I so hate cancer!

Patti

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

It means a lot to like your doctor Patti, and, I am so glad you like yours.  It does sound like she is on top of this and I am thankful for that. 

She thinks your bc had something to do with this?  Did she say exactly? 

I hope the rads will kill this so you won't need surgery Patti. 

I am with you..I hate cancer too!  The gift that keeps on giving :(

Thanks for the update!  I was hoping you would come on tonight to fill us in.

We'll be with you on the 16th!

Hugs, Lex

Patti1967
Posts: 186
Joined: Mar 2013

Thank you Lex:) They are just not sure if there is a connection or not...they are leaning towards my lowered immune system enabling it to spread so fast.  They looked over my post bilateral mastectomy PT/CAT  scan from last Sept which they agree was clear.  I just hope this next scan is clear.

Patti

 

Josie21
Posts: 338
Joined: Nov 2012

Hi Patti,

I will have my fingers, toes and everything else possible crossed that you will only need the radiation. I am so happy that you found a great doctor who is willing to do some investigating as well.  Feeling confident in your doctor, as you already know, is so important. Please keep us updated with your progress and know that you are in my thoughts and prayers.  I think one cancer at a time is plenty to deal with, I feel so bad that you have to deal with two.

Many, many hugs and positive thoughts coming your way,

Ginny

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DebbyM
Posts: 3294
Joined: Oct 2009

I pray that your next scan will be clear too.  It seems strange to say that I hope that you only have to do radiation, but, that is what I am hoping for.  I love my doctors too and am glad to know that you like yours.

Big hugs,

Debby

Patti1967
Posts: 186
Joined: Mar 2013

Thanks Ginny and Debby:)  I know...saying I hope you have to have radiation is kind of wierd lol I thought the same thing when I said that to my kids....Thanks for your support, as we all know, having people throwing good vibes your way does wonders for you!

I do really like her, trust her which is so important.  I meet my rad onco on the 16th, I hope I feel the same about him:)  I have been pretty lucky so far with my doctors, with the exception of my first dermatologist who had me putting steriod cream on cancer....thank goodness I got a second opinion and stopped using the cream way before that!

Patti

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Ritzy
Posts: 4384
Joined: Aug 2009

Yea, we are a strange bunch hoping for someone to have to have rads.  But,  that is what I am hoping for too.  I bet you will like your rads onco too.  From my experience, it seems anyone and everyone in the cancer field are angels!  Super nice caring people! 

Thanks for updating us!  You are a member of the pinkies now and we are always here for each other!

Sue :)happy white cloud

Patti1967
Posts: 186
Joined: Mar 2013

Thank you Sue:) I sure appreciate it!

Patti

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Wishing you all the best too!  You've got positive thoughts, cyber hugs and many prayers!

Diane

Patti1967
Posts: 186
Joined: Mar 2013

Thank you Diane:) Much appreciated!

Patti

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Angie2U
Posts: 2993
Joined: Sep 2009

Good luck with your scan Tuesday and know that I am sending you lots of prayers too!

 

Hugs, Angie

Patti1967
Posts: 186
Joined: Mar 2013

Thank you Angie!  It means so much to me:)

Patti

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Did you get the CT scan?  How did it go? 

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Checking too for an update on your scan

 

Sue :)

Patti1967
Posts: 186
Joined: Mar 2013

Thanks Ladies:) Sorry about not posting sooner, my head has been spinning!  I went for my neck CT scan on Tuesday, my doc's NP called me Tuesday night and said that my case was discussed at their weekly cancer patient group meeting, and they wanted to add a med onco to my team.  I asked why?...She then said that my nodes looked good on my neck CT however, it picked up the top part of my lungs and there are some nodules on my lungs. 

So now I am going back Sunday morning for a CT of my chest.  I have talked to the NP everyday this week, they are in rush mode to get every bit of my medical history since my diagnosis of bilateral IDC on 8/8/12.  Tuesday I have a med onco appt at 9am, my surgeon at 12pm and my rad onco at 2pm, it's gonna be a long day.  Then I was told I was put on my surgeons surgery schedule for Wed, just incase they wanted to move fast.  Ugh....

My med onco that treated me for my IDC called me yesterday and told me the university hospital called and she sent them everything, and just to see how I was doing.  Which I thought was very nice of her.  She told me not to worry about changing to a different team, that with my recent head and neck cancer diagnosis along with just finishing chemo for the IDC almost four months ago, that I was where I needed to be going for the very best care.  I told her about the noduels on my lung and she reminded me that, that doesn't always mean cancer:)  I was tempted to ask her to have a look at my chest xrays and CT/PET scan from last sept, I remember hearing "they are fine" back then (all of which was sent to my new team) but I will just wait til Tuesday for anymore answers.

So that's where I am at for now.  Thank you all so much for your thoughts, prayers, well wishes and encouraging words:)

Hugs to all

Patti

Josie21
Posts: 338
Joined: Nov 2012

Hi Patti,

it sounds like you have a great team in place to take care of whatever is going on.  I am so sorry your life is in turmoil right now, but I really am glad that they are moving fast.  I will keep my fingers crossed and say my prayers that those lung nodules are nothing to worry about.  I am so sorry you are going through this nightmare.

Many, many, hugs coming your way!

Ginny

dthompson's picture
dthompson
Posts: 149
Joined: Nov 2012

Hi Patti,

I am hoping and praying for you, please keep us posted on the results from the new scan. I agree that nodules on the lung do not always mean cancer. My wife had one before and after her chemo. Her initial Onc was not worried about it and then her surgical Onc had a MRI done just before surgery and stated that she wasn't worried about it. I had a nodule on my lung five years ago,and still do from the best of my knowledge. It was found during a CT scan I had of my chest when I was injured at work. Every year after that I had a chest X-ray and it was still there, unchanged. God Bless.

 

Dennis  

kmenurse's picture
kmenurse
Posts: 223
Joined: Apr 2013

Praying for you Patti... 

 

 

Patti1967
Posts: 186
Joined: Mar 2013

Thanks all:)  Your support means the world to me!

Patti

Double Whammy's picture
Double Whammy
Posts: 2283
Joined: Jun 2010

Adding my prayers.  Please keep us informed.  We care.

Suzanne

Patti1967
Posts: 186
Joined: Mar 2013

I will and I know you all care and I care for all of you:)

Patti

survivorbc09
Posts: 4378
Joined: Jun 2009

Praying for you too Patti.

Hugs, Jan

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Wishing you good luck with all of your tests that you've got coming up Patti.  You've got the pink sisters all praying for you and prayes do work.

Many hugs,

Lex

Patti1967
Posts: 186
Joined: Mar 2013

Yes prayers do work Lex, thanks:) Thanks Jan:)  

Big hugs!

Patti

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Angie2U
Posts: 2993
Joined: Sep 2009

Sending my prayers too!

Hugs, Angie

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Did you have the CT today Patti?  As everyone else already said, you've got my prayers!

Noel

Patti1967
Posts: 186
Joined: Mar 2013

I did have the CT for the noduels on my lungs yesterday.  I can call today for the results but I'm just going to wait until I go back tomorrow.  I have a full day of appts tomorrow, med onc at 9am, surgeon at 12pm and rad onc at 2pm.  So i figure today I'm just going to have a care free day:)  Thanks all for having me in your thoughts and prayers, it warms my heart!  I will let you know how tomorrow goes:)  

Hugs....Patti

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

We will all be waiting to hear your results Patti!

Prayers and hugs,

Lex

Josie21
Posts: 338
Joined: Nov 2012

Hi Patti,

I hope everything goes well tomorrow.  You are in my thoughts and prayers.  

Many, many hugs coming your way,

Ginny

Patti1967
Posts: 186
Joined: Mar 2013

Thanks Lex and Ginny:)

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

You are in my prayers too Patti!

Patti1967
Posts: 186
Joined: Mar 2013

Thanks Megan:)

VickiSam's picture
VickiSam
Posts: 8255
Joined: Aug 2009

Sending our gentle hugs, support and prayers in your direction.  Please keep up posted, and use this site as a sounding board ...

 

Vicki Sam

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

You've got me to add to the prayers, hugs and support! 

Hugs, Kylez

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Positive thoughts, prayers, lots of cyber hugs and anything else you need from me or the pinkies!

 

Sue :)

Patti1967
Posts: 186
Joined: Mar 2013

Thanks all, so here is where I am at after a long day....The chest CT came back not great, to noduels still both pretty small one 9mm and one 1cm, the 1cm one has them "very concerned" and I will being getting a biopsy on LUL, yes they think it is breast cancer:(  I have a PET on Thursday to see if I have any other areas. 

Tomorrow I will be having surgery on my SCC lower lip and chin with node removal.  I will be having 36 rad treatments with chemo being a good possibility.  Then if my lung biopsy is positive, they will come up with a treatment plan with that.  I had both my med onc and rad onc both say that they were just about positive it was going to come back positive for mets to the lungs.  Not what I wanted to here, ever, but heck I just finished chemo for my breast cancer on Dec 10. 

But I will fight on, first tomorrow with the new head and neck cancer and then I will fight if I am told "you are now stage lV IDC with mets to the lungs"  I am only 45 I still have a lot of life to live!

Thanks to everyone for your thoughts and prayers, I could sure use them tomorrow, I hate having to have surgery.  I will post when I can.

Hugs!  Patti

Josie21
Posts: 338
Joined: Nov 2012

Hi Patti,

I am so sorry. It seems like everything is being thrown at you at once.  I am just about to go to bed, but before I do I will say an extra long prayer for you tonight.  I hope the doctors are wrong about the lung mets, but if they are not, I have no doubt that you will put your boxing gloves on and fight like hell!  You know how many women are on this site that are living with Stage IV and they are doing just that, LIVING!    I wish I could give you a real hug Patti, but a thousand virtual hugs will have to do instead.

Please know you are in my thoughts and prayers.  

Hugs, 

Ginny

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Patti, I am so sorry. This is just too much to deal with.  I think you are my hero!  I am sending lots of prayers for you today! 

Hugs, Diane

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

My thoughts and prayers are with you Patti.  Keep posting and rely on us if you need strength and support!

Hugs,

Kylez

 

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Yes, you keep fighting!  Good luck with the PET.  Just wish you didn't have to go through any of this and I could just snap my fingers and it would be ok for you.

Hugs, Lex

Double Whammy's picture
Double Whammy
Posts: 2283
Joined: Jun 2010

You've really been hit with so much at once, Patti.  I, too, had to deal with 2 primary cancers at the same time and well remember the fear, dread, and will to beat them.  My heart and prayers go out for you as you continue with doing what you have to do to get through this nightmare.  I'm sending all the good mojo I can muster up for you.

Hugs,Suzanne

Patti1967
Posts: 186
Joined: Mar 2013

I am home from my surgery on my lower lip, chin and neck dissection.  i look like I have been kicked in the mouth  several times and my neck on both sides looks like I've been stabbed several times.  I can't talk or eat and in a lot of pain, but I have managed the art of putting the straw n the back of my mouth and using my tongue to swallow liquids.

They are giving me a week to heal before they do the lung biopsy.  Thanks to all for your support, it has given me strength!

Hugs,

Patti

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Glad you're home now Patti.  I can't imagine what you have been through.  Take it easy and keep ahead of the pain.

Thinking of you,

Diane

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Lots of hugs and good thoughts for you!

Leeza

Patti1967
Posts: 186
Joined: Mar 2013

Thanks all, it really means a lot to me knowing you are all there!

Hugs to you all,

Patti

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I saw you posted and wanted to know how are you feeling today?  In a lot of pain still?  I imagine you are.  Please take it easy if you can, take your pain pills, if you have some, and just relax.

Praying for you Patti,

Angie

Patti1967
Posts: 186
Joined: Mar 2013

Thanks Angie, yep in some pain but have a pretty strong bottle of liquid pain med.  I'm not as bad as yesterday so thats a plus:)

Hugs!

Patti

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Good news that you're feeling better.  Just so sorry Patti for this.  You've got all of us pink sisters in your corner!

Hugs,

Debby

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Take that liquid pain medicine, so, you aren't hurting.  Praying, Praying and more Praying for you!

Sue :)

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

How are you feeling today Patti?  I pray better.

Hugs, Kylez

Patti1967
Posts: 186
Joined: Mar 2013

Yeah I'm feeling better, still can't eat or talk but the swelling is definitely going down and I haven't had to use any pain meds today:)  Thank you for asking!:)

Patti

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