Apr 03, 2013 - 9:19 pm
Had a pretty good exam today from my ENT. My Onc wanted me to see him after my NED CT. The problem was he only has office visits one 1/2 days a week, the rest of the time he is doing surgery (mostly Davinci)So it took me almost a month to get in. Anyway he was really pleased after he scoped me. He told me that everything is healing well.
My main complaint right now is that ANYTHING that isn't milky smooth gets stuck in my throat or causes my throat to swell, no way to tell which. He told me that the BOT and Epiglottis is still very swollen from the radiation and that's what is causing my problems. It's driving me nuts that I'm always hungry and can't eat anything except Ensure and milkshakes. That means I have to keep using my PEG even though my body really hates the Nutren. I actually wake up from dreams and I'm chewing. Imagine that.
As I was leaving he said he wanted to see me again in three months. I said jokingly, "well I guess I'm not going to die from this before then". He said, "you are never going to die from this". Kinda of made me feel good.
Take care and keep the faith you guys that are just starting out.