Apr 03, 2013 - 8:26 pm
I guess I’m just scared and looking for some advice. A little background: 3 yrs ago my urologist ( I have intercystial cystitis) found a small 2~3 cm mass in the upper pole of my left kidney. At first the CT indicated that it was indeterminate so he had me go in for another CT 3 months later. At that time he said he was very confident that it was a simple cyst - nothing to worry about. So I didn't worry, life went on yadda yadda... Every once in a while I have back pain but never really thought much about it especially since i also have IC.
Fast forward to Sunday. I had severe flank pain and blood in my urine so I went to the ER. They did a CT. The ER doc came in and said, 'by the way you have a mass in your left kidney did you know?' I said, "Yes, they found it 3 yrs ago, but how big is it?" He said, " about 2.5 cm". I said "Ok so it hasn’t changed any…cool." I was sent home with some pain meds... Monday I was looking over my ER paperwork and found the CT report, which states that I have a"... 8.7cmx6.7cm lesion... that has heterogeneous linear areas within it likely multiloculated lesion left kidney mid pole lateral cortex with internal areas of increased density. Further evaluation with a dedicated MRI with contrast is recommended to evaluate this area better."
Why wouldn't the ER doc have told me what was actually in the report? And why wouldn't they have done the MRI as recommended? I’m so frustrated about the whole thing!
I made an appointment with my Urologist for Friday, but I’m not really sure what all to say. I just had a CT so I don't want to play another round of wait and see. Am I getting all worked up over nothing? Is a ~5cm growth in 3 yrs normal?
Any advice would be greatly appreciated!!