Apr 02, 2013 - 2:35 pm
I'm a 30 year old male in Columbia, South Carolina.
In September of 2012 I experienced painless gross hematuria, which was quite a shock. I visited a general practitioner who advised that given my youth and otherwise healthy condition, I likely had a severe urinary tract infection. I began a course of antibiotics, and the hematuria evolved to blood clots and eventually reduced to microscopic by the time I completed the course.
The general practitioner informed me that though my symptom had improved, the urine culture had shown no bacterial growth, suggesting that there was no urinary tract infection. He recommended that I see a urologist.
The urologist appointment was scheduled two weeks later, and when he performed a urinalysis, there was no hematuria. He scheduled a general x-ray which also revealed no abnormalities. He suggested that we could take one of two courses of action:
I opted for the wait and see approach, and he recommended that if I had a recurrence of hematuria, I should see him immediately.
Everything was going fine until March 19, 2013 when I experienced a few blood clots in my urine, which were minute and would likely not have been noticed if I hadn't been taking a proactive approach in watching my urine since the initial episode.
I called the urologist to schedule an appointment, and he set up a CT scan for March 29, 2013 and an office visit to review the results immediately afterwards.
Per the radiologists report, the CT scan revealed:
The urologist is a 64 year old traditionalist who has recommended an open radical nephrectomy. He suggested that I discuss the situation with my family and meet with him on April 3, 2013. He stated that there are no other tests to be performed at this time, it's just important to get the kidney removed as soon as possible.
I am considering seeking other medical opinions or options.
Please keep me in your thoughts and prayers.
I have been researching and reading non-stop since this discovery, and have read the kidneycancer.org free book, among many other forums and clinical studies. I'm particular interested in potential recurrence with partial nephrectomy, and the laparascopic vs. open debate.
Any information or help that you can provide, if you've been through this would be helpful.
What questions should I ask my doctor tomorrow?